[tri-med] Re: Costello syndrome

Thank you so much Jennifer for the website.  I sent it off to my friend who is 
in contact with them.  Boy, you girls and guys are good at helping...and FAST 
too.  I hope they find a group like we all have here...fun,loving,caring and 
very supportive of each other.  Thanks I know I don't write much but I read 
every email and have learned alot from everyone.  The knowledge that is shared 
on this support group is awesome.  I have only had the honor of meeting four 
families but feel like I know most of you.  You are all awesome and I talk 
about all of you all the time to my family and friends.  Thanks for 
everything.....
Tracy mom to Cody (Trisomy 9)
-------------- Original message -------------- 

> I found a website for the Costello Syndrome support group. It is 
> http://www.costellokids.co.uk/ . It looks like there is quite a bit of info 
> and contacts for parents. I hope they can find the help they need. 
> 
> Jennifer, mom to Arwen, 7; Elanor (t18), 5; caregiver to Joe (cerebral palsy 
> & spastic displaysia), 26 & Eric (cerebral palsy & seizure disorder), 19; 
> and wife to Andrew; Boise, Idaho 
> 
> ----- Original Message ----- 
> From: 
> To: "Trisomy" 
> Sent: Wednesday, June 29, 2005 6:28 AM 
> Subject: (no subject) 
> 
> 
> > Good morning has anyone ever heard of "Costello Syndrome"? 
> > Cody's P.P.I. teacher has a friend that has a grandson who was born two 
> > months premature and they are saying he has this syndrome. They have 
> > tried to find info on the net but are having a hard time finding any 
> > information. Thank you in advance for any input from all of you wonderful 
> > and knowledgeable parents. 
> > Tracy mom to Cody (Trisomy 9) 
> > Building ___ooOOoo__ Rainbows 
> > www.trisomyonline.org 
> > Families Helping Families On-line 
> > 
> > 
> 
> 
> Building ___ooOOoo__ Rainbows 
> www.trisomyonline.org 
> Families Helping Families On-line 
> 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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