[tri-med] Costello syndrome

I found a website for the Costello Syndrome support group.  It is 
http://www.costellokids.co.uk/ .  It looks like there is quite a bit of info 
and contacts for parents.  I hope they can find the help they need.

Jennifer, mom to Arwen, 7; Elanor (t18), 5; caregiver to Joe (cerebral palsy 
& spastic displaysia), 26 & Eric (cerebral palsy & seizure disorder), 19; 
and wife to Andrew; Boise, Idaho

----- Original Message ----- 
From: <verheyen@xxxxxxxxxxx>
To: "Trisomy" <tri-med@xxxxxxxxxxxxx>
Sent: Wednesday, June 29, 2005 6:28 AM
Subject: (no subject)


> Good morning has anyone ever heard of "Costello Syndrome"?
> Cody's P.P.I. teacher has a friend that has a grandson who was born two 
> months premature and they are saying he has this syndrome.  They have 
> tried to find info on the net but are having a hard time finding any 
> information.  Thank you in advance for any input from all of you wonderful 
> and knowledgeable parents.
> Tracy mom to Cody (Trisomy 9)
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>
> 


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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