[tri-med] Choanal Stenosis

----- Original Message -----
From: "Jocelyn Knowd"
> >Thankfully we know Alex's is mainly membrane not bone.

> >Then it might be a more feasible solution?

I don't know. Because Alex now compensates with mouth breathing they may not 
want to worry about it. His ped however believes
strongly that he needs to be able to nose breath easily (based on his 
experience with children who have CHARGE), particularly
because of the OSA (obstructive sleep apnea) issues.

In the past I have always been able to break the membrane to let him 
breathe/sneeze. But now after all this time there is so much
scar tissue its a lot, lot harder.

I have to find a new ENT as ours retired in June (and will be very much 
missed!!) I must admit that the thought of 3 or 4 months of
stents doesn't excite me..... but the thought of him not being so snuffly all 
the time is very tempting. The plastic surgeon has
suggested doing the choanae and his palate with his ears.........

aaahhhh decisions, decisions, decisions......

If you look up, there are no limits.
-- Japanese Proverb

Keep Looking for Rainbows!!!
Karen, Mum to Alex (6, T-18 mosaic)
Sydney, Australia
http://members.optushome.com.au/karens
http://www.trisomyonline.org

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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