[tri-med] Re: Chloral hydrate JUDE and anyone else who wnts to read. :)

----- Original Message ----- 
From: "Fawna Lockwood"
>>Thing is that Harlan also said that not even all
> children with respiratory problems CAN breath easier when
> fussy.  Some find it harder.  So this is a real gray area
> which requires a whole lot of that Mommy intuition thingy.

More than mummy intuition they should have a sleep study. Thats the only way 
you are going to find out exactly whats going on. I agree with the doctor 
that spoke at the Philly conference - sleep studies should be part of the 
management of our kids just like they are for T-21.
I only wish Alex had had one a lot earlier than he did. I still wonder how 
much better he would be today if he had had a sleep study earlier and if the 
respiratory doctor hadnt lied to me for so long. He may have survived but I 
wonder what sort of damage all those apneas and respiratory arrests did to 
his brain, not to mention my sanity.

Life consists not in holding good cards but in playing those you hold well.
                                            -- Josh Billings

Keep Looking For Rainbows!!
   _--_|\
 /Karen \
 \ _.--._ /
          v Karen, Mum to Alex (12 years, T-18 Mosaic)
http://members.optushome.com.au/karens

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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