[tri-med] Re: Changing mail to Digest

Bill,

 From one grandparent to another. I know your kids will appreciate 
your support, especially as you seem to be sensitive about not 
pushing. The fact that you came on this list is a good start. All the best!

At 01:25 PM 27/01/2006, you wrote:
>
>Hi Michelle,
>
>Thanks for your response...  I am the Grand Daddy of Michelle,  born
>1-4-2006. She is T 18 and I am trying to obtain info, and hoping to 
>get my  daughter
>to check out this website.
>
>It would we good to for her to understand that "there is a chance"  beyond
>what she, Lisa and Mike, are possibly hearing. You do know that the 
>early  days
>are somewhat discouraging, and at the same time, we have to be positive  yet,
>realistic as to any possibilities.
>
>I am so glad to hear your "story" about the success' of Alex! That  is very
>encouraging... I do hope Lisa will soon join this support forum. 
>Ya  know, Dads
>can only do so much..... I don't want my daughter to feel that I am  pushing
>her and her husband in any direction. I just know, from previous  experience,
>how much a support forum can mean... Between being widowed and a  cancer
>survivor, support  can make a big diffeence.
>
>The old story... Knowledge is Power!!!
>
>This is a wonderful group of real people... Thank  you!
>
>Love ya'll,
>
>Bill...
>
>In a message dated 1/26/2006 11:52:23 A.M. Central Standard Time,
>jwaite@xxxxxxxxxxxxx writes:
>Hi and  welcome Bill!
>Four new folk in 2 days.....and 2 of them Dads at  that!
>
>Care to share a bit about your reason for being here?
>
>My  is our oldest son, Alex (also known as US Alex to avoid confusion at
>times  between he and Aussie Alex). The flavor of trisomy we deal with is
>t-14 and  it is very unusually being partial AND mosaic in nature. He's a
>'rare,  rare'.
>
>Alex is 18, will graduate from high school this year, walks,  talks, rides a
>bike, ok...drives a car with in limits as he gets rattled  and lost in
>unknown areas, loves to play card games and is currently  enjoying typical
>teenaged male pursuits: PS2, watching sports (Detroit  Pistons and Detroit
>Red Wings), shooting hoops and being snarly with his  folks.  LOL
>
>Alex was very typically trisomy at birth but started  making good progress
>with development approaching his 2nd  birthday.
>Alex's medical issues are:
>allergies (diagnosed by an  allergist with allergy testing)
>allergy induced asthma
>benign branch  pulmonary stenosis
>short statue
>a set of fused ribs
>hypermobile  shoulders and thumbs
>strabismus which was corrected with glasses (although  his left eye will
>diverge quite a bit when he is really  tired)
>scoliosis
>eczema
>a learning disability
>Alex is very  young/immature in some areas and age appropriate in others. He
>has 'gaps'  in his abilities that make getting a good handle on just where he
>is  exactly somewhat hard. He also has processing issues.
>think that's  it..........  :-)
>
>Michelle mom to Alex (18, partial trisomy 14  mosaic) and Molly (15)
>MichiganUSA
>
>
>
>
>
>
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>
>
>
>
>--
>No virus found in this incoming message.
>Checked by AVG Free Edition.
>Version: 7.1.375 / Virus Database: 267.14.23/240 - Release Date: 25/01/2006

Jocelyn, Wife to Frank, Mother to Ian, Gillian and Susan
Grandmother (Nanna)  to Carly 18, Mathew 17, Ashleigh 16, Alex 13 and 
Tess nearly 9 years (T18)
and step-Nanna to Carrie 18.
Living at North Richmond, NSW Australia 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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