[tri-med] Re: Changing mail to Digest

 
Hi Michelle,
 
Thanks for your response...  I am the Grand Daddy of Michelle,  born 
1-4-2006. She is T 18 and I am trying to obtain info, and hoping to get my  
daughter 
to check out this website.
 
It would we good to for her to understand that "there is a chance"  beyond 
what she, Lisa and Mike, are possibly hearing. You do know that the early  days 
are somewhat discouraging, and at the same time, we have to be positive  yet, 
realistic as to any possibilities.
 
I am so glad to hear your "story" about the success' of Alex! That  is very 
encouraging... I do hope Lisa will soon join this support forum. Ya  know, Dads 
can only do so much..... I don't want my daughter to feel that I am  pushing 
her and her husband in any direction. I just know, from previous  experience, 
how much a support forum can mean... Between being widowed and a  cancer 
survivor, support  can make a big diffeence.
 
The old story... Knowledge is Power!!!
 
This is a wonderful group of real people... Thank  you!
 
Love ya'll,
 
Bill...
 
In a message dated 1/26/2006 11:52:23 A.M. Central Standard Time,  
jwaite@xxxxxxxxxxxxx writes:
Hi and  welcome Bill!
Four new folk in 2 days.....and 2 of them Dads at  that!

Care to share a bit about your reason for being here?

My  is our oldest son, Alex (also known as US Alex to avoid confusion at
times  between he and Aussie Alex). The flavor of trisomy we deal with is
t-14 and  it is very unusually being partial AND mosaic in nature. He's a
'rare,  rare'.

Alex is 18, will graduate from high school this year, walks,  talks, rides a
bike, ok...drives a car with in limits as he gets rattled  and lost in
unknown areas, loves to play card games and is currently  enjoying typical
teenaged male pursuits: PS2, watching sports (Detroit  Pistons and Detroit
Red Wings), shooting hoops and being snarly with his  folks.  LOL

Alex was very typically trisomy at birth but started  making good progress
with development approaching his 2nd  birthday.
Alex's medical issues are:
allergies (diagnosed by an  allergist with allergy testing)
allergy induced asthma
benign branch  pulmonary stenosis
short statue
a set of fused ribs
hypermobile  shoulders and thumbs
strabismus which was corrected with glasses (although  his left eye will
diverge quite a bit when he is really  tired)
scoliosis
eczema
a learning disability
Alex is very  young/immature in some areas and age appropriate in others. He
has 'gaps'  in his abilities that make getting a good handle on just where he
is  exactly somewhat hard. He also has processing issues.
think that's  it..........  :-)

Michelle mom to Alex (18, partial trisomy 14  mosaic) and Molly (15)
MichiganUSA







                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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