[tri-med] Re: Changing mail to Digest

----- Original Message ----- 
From: <DadDina@xxxxxxx>
> Thank you for making this forum possible!

Hi and welcome Bill!
Four new folk in 2 days.....and 2 of them Dads at that!

Care to share a bit about your reason for being here?

My is our oldest son, Alex (also known as US Alex to avoid confusion at
times between he and Aussie Alex). The flavor of trisomy we deal with is
t-14 and it is very unusually being partial AND mosaic in nature. He's a
'rare, rare'.

Alex is 18, will graduate from high school this year, walks, talks, rides a
bike, ok...drives a car with in limits as he gets rattled and lost in
unknown areas, loves to play card games and is currently enjoying typical
teenaged male pursuits: PS2, watching sports (Detroit Pistons and Detroit
Red Wings), shooting hoops and being snarly with his folks.  LOL

Alex was very typically trisomy at birth but started making good progress
with development approaching his 2nd birthday.
 Alex's medical issues are:
allergies (diagnosed by an allergist with allergy testing)
allergy induced asthma
benign branch pulmonary stenosis
short statue
a set of fused ribs
hypermobile shoulders and thumbs
strabismus which was corrected with glasses (although his left eye will
diverge quite a bit when he is really tired)
scoliosis
eczema
a learning disability
Alex is very young/immature in some areas and age appropriate in others. He
has 'gaps' in his abilities that make getting a good handle on just where he
is exactly somewhat hard. He also has processing issues.
think that's it..........  :-)

Michelle mom to Alex (18, partial trisomy 14 mosaic) and Molly (15)
MichiganUSA

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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