[tri-med] Re: Carolyn & Mike

How awesome he sounds like an amazing yourng man...and you sound like an 
amazing young woman.  He is very blessed to have you for a big sister.
Thanks for sharing with us.
Tracy mom to Cody (Trisomy 9)
-------------- Original message -------------- 
From: C <cbugsbunny89@xxxxxxxxx> 

> Since some people have asked about Mike I'll be happy to tell. We are from 
> Chicago Illinois, Mike is 17 and I am 19. We started some units on Genetic 
> disorders in my Bio class so I started looking into Mike's condition which is 
> how I found the list. Mike is not verbal. He has worked with speech 
> therapists, 
> but is just unable to form any words. Mike communicates through a few 
> different 
> ways. His school has supplied him with what we call his "talker" a basic 
> electronic device with a touch screen that speaks for him, he also uses some 
> sign language, but only a few basic signs, please, hungry, thirsty, that sort 
> of 
> thing, He has trouble with his hands sometimes, his motor skills aren't that 
> great. My mom and I can tell what he is saying a lot of the time when he uses 
> his voice by his tone and inflection because we've been around him the most. 
> He's a very friendly guy who often suprises us with how many people he knows. 
> We 
> get people who come up to us 
> when we are out to say hi to Mike or sometimes when peole find out my last 
> name 
> they'll come up to me and ask "are you Mike's sister?" We are very involved 
> in 
> Special Olympics, Mike plays a dozen sports a year at least. He is in kinda a 
> trade program at school. The kinda of program to gradually train special 
> needs 
> kids on how to operate at work and in other places. He gets to go through the 
> graduation ceremony this year, but he is still going to go back to school and 
> be 
> a super senior until he's 21. And he's a typical teenager in some regards, at 
> home he's my best friend wants to do stuff with me, but the minute his 
> friends 
> are around he pushes me away and is embarrased to be seen with me. And of 
> course 
> his favorite thing in the world is Pokemon. 
> 
> 
> Building ___ooOOoo__ Rainbows 
> www.trisomyonline.org 
> Families Helping Families On-line 
> 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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