[tri-med] Re: Caroline's PT update

Interesting....

I wonder how your EI PT would respond if you showed her all of the  
stuff you learned?  Does she need to be made aware that she needs to  
improve?  It's SO hard when you like the person and don't want to  
make them feel badly, yet you know they aren't doing what they should  
be doing!  I'm terrible at confrontation.

Slightly going off on a tangent: Do you ever fill out an EI  
evaluation form?  We have a very detailed one that comes annually.  
They seem to take it seriously, too, because both times I haven't  
gotten around to filling it out and someone calls and goes through it  
with me over the phone. Anyway, it asks all sorts of questions about  
how your EI experience has been.  If you have that it might be a good  
forum for stating concerns.

Glad to hear Caroline is getting some good help!

Loren (wife to Kraig, mom to Keren Elyse, T18, 3 years old!  
(9/27/02), and Clarissa Joanne (7/17/05) )
Southeast Michigan
http://webpages.eng.wayne.edu/~ad6075




On Mar 29, 2006, at 9:35 AM, Irene Smith wrote:
>
> I am going to be taking her to Shriners every other week from now on.
> Unfortunately, they are about an hour away from us, so it is not  
> convenient,
> but I HAVE to do this for Caroline.  I am just sick I didn't start  
> this long
> ago.
>
> So, my question is whether I should also keep the EI PT or just  
> discontinue
> services.  She has been basically doing the same exact things with  
> Caroline
> for 2 1/2 years.  On one hand, I feel like I could just tell and  
> show her
> what Shriners is doing, on the other hand, that should be HER job!  I
> shouldn't be instructing her on how to work with Caroline.  She  
> doesn't seem
> to be offering me anything, other than the fact that she does make  
> sure
> Caroline gets a hour devoted to some type of PT each week.  I just  
> feel like
> I don't need her in my house a hr a week and I am really getting  
> annoyed at
> how little she has done.
>
> Another thing that really irks me is how many parents who just  
> accept EI
> therapists not realizing how much they are missing out on!  It is  
> really
> scary!  I wish there was a way I could get the word out, but not  
> sure how
> you would do this.
>
> Any suggestions on how to handle this situation?
>
> Thanks!
> --
> Irene
> Christina (4), Caroline (2 with partial trisomy 17p) and Kallie (born
> 6/23/05)
> Caroline's site:  http://www.caringbridge.org/visit/carolinesmith
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>



                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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