[tri-med] Re: Caroline's PT update

OMG.
I went through this with Claire.
We had Early Intervention for a while and until we finally got PT, I
didn't know either.
The EI did mention once that she wasn't able to do what PTs do - even
tho they sound like they are a therapist, they really don't have the
qualifications to stretch, etc.  So essentially, she was just
'playing' with her, with low goals.  Since we weren't able to get PT
yet, and the EI was there, we kept her, but once PT started, we didn't
see her much. The difference betweent the two were amazing.

I would drop the EI, unless you want to bring the EI to the PT appt
with you and let her learn a few things so her time with Caroline
would be more productive.  If that isn't an option, it could just
continue to be a waste of your time and hers - eventually you will
dislike the visits.
Instead, you can use that exact space of time to work with Caroline on
some of the stuff you learned from the PT, even if it means going to a
park, or somewhere that there are no interuptions in your therapy.=20
Just my opinion.

Can your insurance pay for some PT?  It would be great to also get it
close to home and more frequently, then you wouldn't be so concerned
about letting the EI go, based on losing the time devoted to
Caroline's therapy.

I'm so glad things are working out and without that EI, you may not
appreciate what you have found.  It sounds like a great PT too! =20
Think about the goals you want for Caroline and be sure the PT stays
focused on them each visit. I think big and my goals for Claire are to
bear weight and stand... even walk!  (I told you, I think big!!).

Debbie, mom to Claire

On 3/29/06, Irene Smith <67.irene@xxxxxxxxx> wrote:

> HOLY COW is all I can say.
> I am actually almost sick at how much better their PTs are compared to he=
r
> early intervention PT.  They spent a while just looking at how she is
> positioned in her wheelchair (her EI PT has never even heard of the Kid K=
art
> and never looked at how she sits in it).  They worked on stretching for a
> while, recording exactly what her % of range of motion is in every aspect
> (her EI PT has NEVER done any stretching whatsoever!).  They talked to me
> about how exactly your spine strength develops and gave me NUMEROUS ideas=
 on
> ways to increase her strength. ... I learned more during this hour than I=
 have during the last 2 1/2 years with her EI therapists.  Sad.
>
> I am going to be taking her to Shriners every other week from now on.
> Unfortunately, they are about an hour away from us, so it is not convenie=
nt,
> but I HAVE to do this for Caroline.  I am just sick I didn't start this l=
ong
> ago.
>
> So, my question is whether I should also keep the EI PT or just discontin=
ue
> services.  ...
> Another thing that really irks me is how many parents who just accept EI
> therapists not realizing how much they are missing out on!  It is really
> scary!  I wish there was a way I could get the word out, but not sure how
> you would do this.
>
> Any suggestions on how to handle this situation?
>
> Thanks!
> --
> Irene
> Christina (4), Caroline (2 with partial trisomy 17p) and Kallie (born
> 6/23/05)
> Caroline's site:  http://www.caringbridge.org/visit/carolinesmith
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>
>


--
Sleep is for Pansies.

Faith sees the invisible, believes the incredible and receives the impossib=
le!
If you want the rainbow, you gotta put up with the rain.
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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