I have been in touch with our genetics department, and they are delighted= =20the I want to assist! Trust me, the first site that any parent will b= e given is this! However, the norm in South Africa is to leave the baby = to die, so it may be a struggle to get doctors to treat our babies with r= espect. LOL Kathy s -----Original Message----- From: Glenn Hardy [mailto:hardyboyz@xxxxxxxxxxxx] Sent: Wednesday, July 23, 2003 6:15 AM To: tri-med@xxxxxxxxxxxxx Subject: [tri-med] Re: Can you help? >>>>>>>>>> what I am getting at is, our pediatricians and obstetricians should be better informed of the "real" statistics of our kids' syndromes and be able to give us non-biased information, instead of sending us home to find things on the internet. The thing that drives me nuts is that even when they know that there are long term survivors they don't share it. My Rebecca is 12 years old and I am an Rn working in labour and delivery and the doc's know I have a T18M child but no one asks me to talk to others.......they see her as the exception, I have been in contact with the local genetics people I have sent pictures, its as if they don't want to tell people that these kids do survive and thrive=20 Susan mom to Rebecca T18m age 12 =20 Building ___ooOOoo__ Rainbows =20 www.trisomyonline.org =20 Families Helping Families On-line =93This e-mail is sent on the Terms and Conditions that can be accessed b= y Clicking on this link http://www.vodacom.net/legal/email.asp " Building ___ooOOoo__ Rainbows www.trisomyonline.org Families Helping Families On-line