[tri-med] Re: C-Pap{kayden has one

hello kayden has the blue gell mask it its for udults or kids I have to tuck it 
around the nose part to make sur eit fits good, bit I have used many mask and 
this one is the best I have found it is comfortable too. kayden has a cleft 
pallet also and is a big mouth breather BUT I REFUSE to use the one that goes 
over the mouth,,, because the dr said it is dangerouse for kids because if they 
were to puke with sometimes can happen from all the air, it would get sucked 
back in to them,, even though he is is mouth breather he does fine with the 
type of machine we have because of the type that it is, I sugest you talk to 
the dr and ask for bypap as that is what they desided to use with kayden 
instead it is better on them and for them being mouth breathers too,,kayden has 
had a machine for over a year now. marta
  ----- Original Message ----- 
  From: Jennifer Vanderbeek 
  To: tri-med@xxxxxxxxxxxxx 
  Sent: Thursday, January 29, 2004 7:39 AM
  Subject: [tri-med] C-Pap

  Hello all!  Well, we just got home from our sleep study to get Elanor on
  c-pap.  I think I wrote about it a few months ago.  We finally got our
  appointment and everything went well!  We should be getting a machine of
  our own soon.

  I was wondering if anyone could give me advice on what type of masks
  anyone on the list may use.  Elanor has a cleft palate and is a big
  mouth breather, so she needs a mask that fits over both her nose and
  mouth.  The tech we worked with suggested we play around with masks, and
  to let her know what we find out so she can help other little ones who
  need c-pap.

  Anyone have any advice (yes, I know that's a dangerous question on the
  list!) about masks or any other things concerning c-pap?  Any websites
  or literature that anyone knows about?

  Thanks!

  Jennifer, mom to Elanor-4!, full T18; and Arwen-6; caregiver to Joe-25
  cerebral palsy & spastic dysplasia; wife to Andrew-32 and wonderful! 
  Boise, Idaho USA


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                  Families Helping Families On-line

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