[tri-med] Re: CHLORAL HYDRATE EXPERIENCES/knowledge? important

Oh, when you use that name it rings a bell! It is also called Ativan and
this is the one that the respirologist got so angry about when the
neurologist prescribed it, so it is on Bec's forbidden list, as is nitrous
oxide (laughing gas) as this caused a full seizure on the first whiff.
Currently the anaethetist feels she must have desated very quickly. Nitrous
oxide must be accompanied with breathing support as Becca does not breath as
expected.

Catherine, mum of Becca (33, Trisomy 13)



-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx
[mailto:tri-med-bounce@xxxxxxxxxxxxx]On Behalf Of Barbara Farlow
Sent: Monday, January 28, 2008 7:09 AM
To: tri-med@xxxxxxxxxxxxx
Subject: [tri-med] Re: CHLORAL HYDRATE EXPERIENCES/knowledge? important


I stand corrected on the midazolam. It was lorazepam. Lorazepam was ordered
q2 and chloral hydrate, q8. Definitely, we were told the chloral was to
improve airway tone. The morphine began after the DNR with no consent.
Most of the night, Annie was awake; restless, agitated, gasping, grunting.
We spent hours dipping a pacifier into sugar water because she was also npo
and very hungry. It is very disturbing to me that my daughter was left to
suffer this way. It is clear from the onset that they were not going to help
her; so why let her suffer?

barb





> From: trisomy@xxxxxxxxxxx
> To: tri-med@xxxxxxxxxxxxx
> Subject: [tri-med] Re: CHLORAL HYDRATE EXPERIENCES/knowledge? important
> Date: Mon, 28 Jan 2008 15:41:59 +1100
>
> ----- Original Message -----
> From: "Barbara Farlow"
> > When I asked why this drug was used (it was given in a cocktail along
with
> > morphine and Midazolam) I was told that it helps to "improve airway
tone".
> > Whatever that means, I am not sure.
>
> BULL! !! Sorry - no way could chloral improve airway tone - our kids are
> floppy it would decrease airway tone, making the trachea collapse more and
> create more apneas. Especially if used with morphine. Midazolam is less
> likely to do that, but it can, perhaps the only reassuring thing I could
say
> (if its reassuring that is) is that with Midaz in the mix Annie wouldnt
have
> been aware of what was happening even if she was awake - Midazolam is an
> amnesiatic (sp?) and is often called "walking sedation" - meaning that you
> can be walking around co-operating with people but have no recollection of
> what happened or what you did when the drug wears off.
>
> We give Alex Midazolam when he is having a Shapiro's crisis, especially if
> he becomes violent. It sedates him and increases his body temp (which is
why
> we use it) but he can still walk to the car etc for me. But he has
> absolutely no memory from when I give it to him until it wears off.
>
> Life consists not in holding good cards but in playing those you hold
well.
>                                             -- Josh Billings
>
> Keep Looking For Rainbows!!
>    _--_|\
>  /Karen \
>  \ _.--._ /
>           v Karen, Mum to Alex (12 years, T-18 Mosaic)
> http://members.optushome.com.au/karens
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>

_________________________________________________________________


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line
No virus found in this incoming message.
Checked by AVG Free Edition.
Version: 7.5.516 / Virus Database: 269.19.14/1247 - Release Date: 1/28/08
10:59 AM

No virus found in this outgoing message.
Checked by AVG Free Edition.
Version: 7.5.516 / Virus Database: 269.19.14/1247 - Release Date: 1/28/08
10:59 AM

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: