[tri-med] Re: CHLORAL HYDRATE EXPERIENCES/knowledge? important

I stand corrected on the midazolam. It was lorazepam. Lorazepam was ordered q2 
and chloral hydrate, q8. Definitely, we were told the chloral was to improve 
airway tone. The morphine began after the DNR with no consent. 
Most of the night, Annie was awake; restless, agitated, gasping, grunting. We 
spent hours dipping a pacifier into sugar water because she was also npo and 
very hungry. It is very disturbing to me that my daughter was left to suffer 
this way. It is clear from the onset that they were not going to help her; so 
why let her suffer?

barb





> From: trisomy@xxxxxxxxxxx
> To: tri-med@xxxxxxxxxxxxx
> Subject: [tri-med] Re: CHLORAL HYDRATE EXPERIENCES/knowledge? important
> Date: Mon, 28 Jan 2008 15:41:59 +1100
> 
> ----- Original Message ----- 
> From: "Barbara Farlow"
> > When I asked why this drug was used (it was given in a cocktail along with 
> > morphine and Midazolam) I was told that it helps to "improve airway tone". 
> > Whatever that means, I am not sure.
> 
> BULL! !! Sorry - no way could chloral improve airway tone - our kids are 
> floppy it would decrease airway tone, making the trachea collapse more and 
> create more apneas. Especially if used with morphine. Midazolam is less 
> likely to do that, but it can, perhaps the only reassuring thing I could say 
> (if its reassuring that is) is that with Midaz in the mix Annie wouldnt have 
> been aware of what was happening even if she was awake - Midazolam is an 
> amnesiatic (sp?) and is often called "walking sedation" - meaning that you 
> can be walking around co-operating with people but have no recollection of 
> what happened or what you did when the drug wears off.
> 
> We give Alex Midazolam when he is having a Shapiro's crisis, especially if 
> he becomes violent. It sedates him and increases his body temp (which is why 
> we use it) but he can still walk to the car etc for me. But he has 
> absolutely no memory from when I give it to him until it wears off.
> 
> Life consists not in holding good cards but in playing those you hold well.
>                                             -- Josh Billings
> 
> Keep Looking For Rainbows!!
>    _--_|\
>  /Karen \
>  \ _.--._ /
>           v Karen, Mum to Alex (12 years, T-18 Mosaic)
> http://members.optushome.com.au/karens
> 
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
> 

_________________________________________________________________


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