[tri-med] Re: CHLORAL HYDRATE EXPERIENCES/knowledge? important

I knew that it was but I guess I thought it was a bit more involved.  =
Has
Donn completed ours yet?


-----Original Message-----
From: tri-med-bounce@xxxxxxxxxxxxx [mailto:tri-med-bounce@xxxxxxxxxxxxx] =
On
Behalf Of Fawna Lockwood
Sent: Monday, January 28, 2008 4:57 PM
To: tri-med@xxxxxxxxxxxxx
Subject: [tri-med] Re: CHLORAL HYDRATE EXPERIENCES/knowledge? important


>I wish there were some sort of database/chart type thing that showed=20
>how different drugs affect our kids differently...I'd be interested in=20
>both the drugs that work and the ones that don't. I know that the info=20
>will be all over the place since every one reacts differently, but I'd=20
>kind of like to be able to show that to our doctors!

Janet,

That's one of the areas we're collecting data in for TRIS. The good, the =
bad
& the ugly!  Here again though we don't really have enough data =
collected
yet to sway too many doctors' long held beliefs that these drugs are all
universally beneficial. But give us enough time & participants, and we
should be able to open some eyes & minds.

Fawna, Research coordinator TRIS Project, mom
to Thom & Rhonda, Lara, & Philina 25yrs (PT6p
& Moya Moya Syndrome), Escondido, CA USA
http://home.mindspring.com/~fawna33/

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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