Barb, i am so sorry for your loss of annie. i think you have a lawsuit on your hands. i am glad that word is getting out on how bad CH is for Trisomy children. i had absolutely no idea and could haver had a nightmare this past Wednesday at the MRI/hearing test. Thanks everyone for sharing your experiences with it. Sharon, mom to Jason T17Mosaic, and Lauren In a message dated 1/25/2008 11:57:55 A.M. Eastern Standard Time, b_farlow@xxxxxxxxxxx writes: I was wondering if anyone had any chloral hydrate experiences, or knowledge to share. This is our experience with chloral hydrate; Annie had an MRI at 1 week and an incident report was written because she stopped breathing when she was give nitrous oxide. The anesthetist told us "make sure that your daughter never has nurse-given sedatives". I had no idea what this was but I immediately wrote it in the journal that I kept at the hospital. Three days before Annie died, the local pediatrician ordered an echo and prescribed chloral hydrate. I asked, "Is this a nurse-given sedative?" and she said it was. I told her we would hold Annie's hands and keep her calm to forgo the chloral hydrate, given the warning we had received. The records show the chloral was ordered, but not administered. 16 hours before Annie died, when we entered the PICU, I heard the intensivist order chloral hydrate. I asked, "Is this a nurse-given sedative?" and he said it was. I told him that Annie was not to have medication like that because Dr. XXX said that it could cause her to stop breathing. He was very annoyed and asked, in a sarcastic tone, "Who is Dr. XXX". I responded that he was the anesthetist in the MRI at the same hospital as we were in. The records show that chloral hydrate was ordered, q8, 150mg. (annie was 5.3 kg). A full dose was given to Annie 4 hours before she stopped breathing. Another full dose was given TWO hours later. There is no doctor's order for the supplemental dose. We were told that a fellow (resident) gave a voice order and the nurse forgot to record it. The director of the department told us that she confirmed this story with the fellow. My husband asked, "what is the name of the fellow?" There was a long silence and then, "I will get back to you on that". A year later, the Coroner said "I do not need to tell you the name of the fellow according to the privacy laws". The medication record for the final nursing shift, which commenced immediately after the chloral hydrate was given is missing. That nurse has left Canada. Please....... if anyone could supply me with the details of an experience with this medication, including doctor's/hospitals names (OFF LIST OF COURSE) it would be extremely helpful. No specific cause of death could be determined for Annie. (no toxicology) The coroner determined that it was due to "complications of trisomy 13". We are appealing for a Coroner's inquest, so this information is very important. Thanks so much. Barb (mom to Annie) **************Biggest Grammy Award surprises of all time on AOL Music. (http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp003000000025 48) Building ___ooOOoo__ Rainbows www.trisomyonline.org Families Helping Families On-line