[tri-med] Re: Brianna in ICU

We will keep Brianna in our prayers. Best wishes in a speedy recovery...
Nejoud just came out of ICU for a bad case of the flu. She had a hig fever of
102 (did not go higer than that). After 6-days they sent her home. She is doing
better now but her G-Tube is still leakes. They don't seem to find a way to fix
it. The doctor said that as a last resort they will do another surgery for
another opening in the stomach for a new one. Did Any one had to do this
before? Nothing mseem to work from filling the the ballon with more water to
changing the size. Open to any suggestions at this point in time....

moe (dad), Rana (mom), Hamzeh (big brother) and Sweet Nejoud (T-18, Born
4/4/2006)
g

Quoting TRIER9@xxxxxxx:

> Dear List Friends,
> What a nice feeling to know so many of you care about my special girl and
> have been sending such encouraging words to our family. Brianna is in ICU.
> They
> couldn't get her fever down last night......thr oe doctor said she'd never
seen
> a
> high fever go long =(
> Today it is down to 102 and they are happy with that!  She needed 3 units of
> blood. Thank God for donors!!
>
> She was just taken off the respirator this morning. She's coming around and
> wanting to sit up. They sedated her more for comfort and she is resting and
> looking very peaceful. Her breathing is being assisted by CPAP.......but just
> a
> little!! =)
>
> on a super-cute note......Brianna must have been in deep 'la-la land' all
> yesterday and last night........she was sucking on her breathing tube like a
> pacifier. One nurse commented that she'd never seen a child do that. She told
> me I
> had my baby back!! LOL. It was nice knowing she was comported by
> sucking......just like a baby.....heck, she had her pacifier until she was 6
> yrs old. It
> was so precious watching her last night!
>
> Gotta run...Love to you all!!
>
> Laurie and Family
>
>
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>
>                   Building ___ooOOoo__ Rainbows
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>                   Families Helping Families On-line
>
>

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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