[tri-med] Re: Breast Feeding - Irene

We tried really hard too for about 5 weeks.  Jackson's lower jaw was just too 
small to latch on.  I tried pumping, but lost my supply fairly quickly.  I felt 
guilty for so long, because I really wanted to breastfeed, but with his weight 
loss, we had no other option than to formula feed.
   
  Wendi, mom to Jackson, trisomy 4p, inverted duplication.
Fawna <fawna33@xxxxxxxxxxxxxx> wrote:
  >One of my big "WHAT IFs" in regards to Caroline's feedings was
>breastfeeding...I WISH like CRAZY that I tried breastfeeding more 
>...but I didn't try hard enough with Caroline. 

Irene,

I tried, really tried with Philina, but she couldn't suck well enough
(high arched palate). I tried for 3 wks, but she was losing weight,
so we had to switch to a bottle.


Fawna, mom to Philina 22 yrs (PT6p & Moya Moya Syndrome)
Research Coordinator: Tracking Rare Incidence Syndromes 
(TRIS) project - We are currently enrolling all varieties of 
Trisomy 13 & 18, living & deceased, for the pilot phase. 
To include your child's data and help update the medical 
literature please see: http://web.coehs.siu.edu/Grants/TRIS/
And to add a link for your Trisomy child's personal web page 
please see: http://www.livingwithtrisomy.org/
Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line

  


                
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                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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