[tri-med] Re: Brain scan

Hi Callie,

Sorry to hear about your stress at the mo. My son also
is T8M and he is 3 years old. He was born 3 months
prem so had numerous ultra sounds of the brain and it
seems his ventricles looked not too bad. After he
finally had an MRI scan they saw that his corpus
callossum (the centre bridge between the two sides of
the brain) is missing. His head growth is ok even
though his head is misshapen from being so prem so the
measurements are never really consistent especially
when taken by different people. I mention this info as
I've been there desperately seeking help and info. I
know its not much help but another bit of info is
about my friends little boy who had hydrocephalus
diagnosed at birth he had a shunt put in to drain and
then about 3 weeks later he had a to have it ajusted.
He is now 3years old and has had no other problems
since.

Katy. son t8m.

--- mcmuni@xxxxxxxxxxxxx wrote:

> Irene,
>  
> Thanks for the info on Caroline.  That is consistent
> with what I heard the doc say yesterday about
> potentially having enlarged ventricles.  I didn't
> really understand what that meant until I just
> looked up hydrocephalus on the web after reading
> your message. It all makes sense now.  It is good to
> know that the shunt is working well.  
> Large heads run in our family, so I'm hoping this is
> nothing more than her finally catching up to the
> rest of us!  
> 
> Callie
> 
> -------------- Original message from "Irene Smith"
> <67.irene@xxxxxxxxx>: -------------- 
> 
> 
> > Hi, 
> > I am sorry, but I don't think it is common for the
> head to grow fast. We 
> > had the same exact problem with Caroline. At 5
> months old they did the scan 
> > and found a LOT of fluid accumulating in the brain
> (hydrocephalus). She had 
> > surgery to put in a shunt. It actually wasn't that
> big of a deal, I guess 
> > the surgery is fairly common (at least at that
> hospital) and we haven't had 
> > any problems with the shunt so far (4 years
> later)...knock on wood. 
> > 
> > Oh, and we had the procedure done at Pittsburgh
> Children's Hospital. Our 
> > local hospitals won't touch Caroline unless
> absolutely necessary. I would 
> > definitely recommend a children's hospital. They
> did the diagnosis and she 
> > had the operation a day or so later (we stayed as
> inpatient). 
> > 
> > Good luck, and sorry I don't have better news. 
> > 
> > Take Care, 
> > Irene 
> > 
> > On 10/22/07, mcmuni@xxxxxxxxxxxxx wrote: 
> > > 
> > > Hi! 
> > > Maiya had a check up today with her
> geneticist... All went well except 
> > > they seemed concerned that her head
> circumference had grown very rapidly 
> > > (and inconsistently with weight and length)
> since our last visit two months 
> > > ago. They are recommending a brain scan to see
> what is going on. They are 
> > > asking us whether we want general anaesthesia or
> not. Because she's an 
> > > infant, our pediatrician is recommending that we
> take her to a children's 
> > > hopsital rather than the local hospital. I'm
> leaning towards going that 
> > > route (general at a children's hospital), but
> wanted to know if anyone had 
> > > any advice. 
> > > 
> > > Also, is it common for Tri kids to experience
> fast head growth? 
> > > 
> > > Thanks so much! 
> > > Callie 
> > > Mom to Maiya (T8M 8 months) and Cade (5yrs) 
> > > Sebastian, FL 
> > > 
> > > Building ___ooOOoo__ Rainbows 
> > > www.trisomyonline.org 
> > > Families Helping Families On-line 
> > > 
> > > 
> > 
> > 
> > -- 
> > Irene 
> > Christina (5), Caroline (4 with partial trisomy
> 17p) and Kallie (2) 
> > Caroline's site:
> http://www.caringbridge.org/visit/carolinesmith 
> > 
> > 
> > Building ___ooOOoo__ Rainbows 
> > www.trisomyonline.org 
> > Families Helping Families On-line 
> > 
> 
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
> 
> 



      ___________________________________________________________ 
Want ideas for reducing your carbon footprint? Visit Yahoo! For Good  
http://uk.promotions.yahoo.com/forgood/environment.html
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: