[tri-med] Re: Brain scan

Irene,
 
Thanks for the info on Caroline.  That is consistent with what I heard the doc 
say yesterday about potentially having enlarged ventricles.  I didn't really 
understand what that meant until I just looked up hydrocephalus on the web 
after reading your message. It all makes sense now.  It is good to know that 
the shunt is working well.  
Large heads run in our family, so I'm hoping this is nothing more than her 
finally catching up to the rest of us!  

Callie

-------------- Original message from "Irene Smith" <67.irene@xxxxxxxxx>: 
-------------- 


> Hi, 
> I am sorry, but I don't think it is common for the head to grow fast. We 
> had the same exact problem with Caroline. At 5 months old they did the scan 
> and found a LOT of fluid accumulating in the brain (hydrocephalus). She had 
> surgery to put in a shunt. It actually wasn't that big of a deal, I guess 
> the surgery is fairly common (at least at that hospital) and we haven't had 
> any problems with the shunt so far (4 years later)...knock on wood. 
> 
> Oh, and we had the procedure done at Pittsburgh Children's Hospital. Our 
> local hospitals won't touch Caroline unless absolutely necessary. I would 
> definitely recommend a children's hospital. They did the diagnosis and she 
> had the operation a day or so later (we stayed as inpatient). 
> 
> Good luck, and sorry I don't have better news. 
> 
> Take Care, 
> Irene 
> 
> On 10/22/07, mcmuni@xxxxxxxxxxxxx wrote: 
> > 
> > Hi! 
> > Maiya had a check up today with her geneticist... All went well except 
> > they seemed concerned that her head circumference had grown very rapidly 
> > (and inconsistently with weight and length) since our last visit two months 
> > ago. They are recommending a brain scan to see what is going on. They are 
> > asking us whether we want general anaesthesia or not. Because she's an 
> > infant, our pediatrician is recommending that we take her to a children's 
> > hopsital rather than the local hospital. I'm leaning towards going that 
> > route (general at a children's hospital), but wanted to know if anyone had 
> > any advice. 
> > 
> > Also, is it common for Tri kids to experience fast head growth? 
> > 
> > Thanks so much! 
> > Callie 
> > Mom to Maiya (T8M 8 months) and Cade (5yrs) 
> > Sebastian, FL 
> > 
> > Building ___ooOOoo__ Rainbows 
> > www.trisomyonline.org 
> > Families Helping Families On-line 
> > 
> > 
> 
> 
> -- 
> Irene 
> Christina (5), Caroline (4 with partial trisomy 17p) and Kallie (2) 
> Caroline's site: http://www.caringbridge.org/visit/carolinesmith 
> 
> 
> Building ___ooOOoo__ Rainbows 
> www.trisomyonline.org 
> Families Helping Families On-line 
> 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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