[tri-med] Re: Brain scan

Hi,
I am sorry, but I don't think it is common for the head to grow fast.  We
had the same exact problem with Caroline.  At 5 months old they did the scan
and found a LOT of fluid accumulating in the brain (hydrocephalus).  She had
surgery to put in a shunt.  It actually wasn't that big of a deal, I guess
the surgery is fairly common (at least at that hospital) and we haven't had
any problems with the shunt so far (4 years later)...knock on wood.

Oh, and we had the procedure done at Pittsburgh Children's Hospital.  Our
local hospitals won't touch Caroline unless absolutely necessary.  I would
definitely recommend a children's hospital.  They did the diagnosis and she
had the operation a day or so later (we stayed as inpatient).

Good luck, and sorry I don't have better news.

Take Care,
Irene

On 10/22/07, mcmuni@xxxxxxxxxxxxx <mcmuni@xxxxxxxxxxxxx> wrote:
>
> Hi!
> Maiya had a check up today with her geneticist... All went well except
> they seemed concerned that her head circumference had grown very rapidly
> (and inconsistently with weight and length) since our last visit two months
> ago.  They are recommending a brain scan to see what is going on.  They are
> asking us whether we want general anaesthesia or not.  Because she's an
> infant, our pediatrician is recommending that we take her to a children's
> hopsital rather than the local hospital.  I'm leaning towards going that
> route (general at a children's hospital), but wanted to know if anyone had
> any advice.
>
> Also, is it common for Tri kids to experience fast head growth?
>
> Thanks so much!
> Callie
> Mom to Maiya (T8M 8 months) and Cade (5yrs)
> Sebastian, FL
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>
>


-- 
Irene
Christina (5), Caroline (4 with partial trisomy 17p) and Kallie (2)
Caroline's site:  http://www.caringbridge.org/visit/carolinesmith


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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