[tri-med] Re: Books for Feeding

----- Original Message ----- 
From: "Holly McCormick"
> I don't know if this is the same whistle kit you are talking about, but I
> have the catalog from Talk Tools and they have several different whistle
> kits with whistles for specific issues like, lip closure horn kit, lip
> protrusion horn kit, etc. including their original horn kit.

Yes its the same program.........

>>The lady who started this program is Sara Rosenfeld-Johnson, a
> speech pathologist.  She founded Innovative Therapists International in
> 1995.  You may have heard of her as she is spokesperson for CHARGE
> syndrome.

Yes!!!
Sara followed up on some earlier work by others and developed the whistle
program. Its been vry benificial for many Charger's.
For those that are new and don't know - because of the hospital's negligence
here Alex was misdiagnosed initially as having CHARGE Syndrome. An
identified syndrome that is probably genetic but the details of which genes
and chromosomes involved remains unknown as yet.

Kids with CHARGE have many features similar to our triers and I still "hang
out" with a lot of Charge families.

>> This might be of interest to some, she has a program called TalkTools
> Drooling Remediation Program.  The program is touted as addressing
> drooling, not from a behavioral standpoint,but from a muscle based
> perspective.  The kit includes several kinds of straws, whistles, etc.
The
> website is www.talktoolstm.com

Yes - parents on the charge list speak quite favourably of the program.
Theoretically it has a lot of scientific basis and again follows up on some
earlier work. Suzanne Morris also incorporates a lot of smooth muscle
exercises into her eating work now as well as does Marci with her e-stim.

I have not lost my mind - it's backed up on disk somewhere.
-- Unknown

Keep Looking For Rainbows!!
   _--_|\
 /Karen \
 \ _.--._ /
          v Karen, Mum to Alex (8 years, T-18 Mosaic)
http://members.optushome.com.au/karens

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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