[tri-med] Re: Bone rejection-lengthening

HELLO TANYA this is Linda B gabb's mom she also is t14m i would love too  
hear how kyle is doing gabb is doing pretty well .. the orthapedics havent said 
 
anything about a plate they just say that there is a large difference with the 
 length and they also wanted to wait till she was older but it is getting 
worse  and she is growing like a weed.. so they feel to go ahead with it ... 
please  keep me updated about kyle  i would love to hear all about him 
Linda B mom to gabby 5  trisomy 14 mos and kaylen 2
 
 
In a message dated 4/17/2008 4:09:37 A.M. Eastern Daylight Time,  
typsy@xxxxxxxxxxxxxxx writes:
Content-Type: Text/Plain;
charset="iso-8859-1"
Content-Transfer-Encoding:  quoted-printable
Hi,=0D
=0D
My name is Tanya and i have a son with  t14m and he is four.  The orthoped=
ic
surgeon is concerned about  the opposite with kye, one side of his body
including his leg is growing  faster than the other but he is not going to=
do
anything until the age  of 7 or 8.  They will put a plate in his leg to st=
op
the bones  from growing.  =0D
There is  always something knew with our  special kids=0D
=0D
Tanya mum to trent 22 , tyrone 21 Kye 4 (t14m)  and  Zakah 2=0D
=0D
-------Original  Message-------=0D
=0D
From: Lbsunshine77@xxxxxxx=0D
Date: 17/04/2008  10:27:17 AM=0D
To: tri-med@xxxxxxxxxxxxx=0D
Subject: [tri-med] Re: Bone  rejection-lengthening=0D
=0D
Hey Jocelyn, this is linda b gabby's mom  (trisomy 14 mosaic).. Gabb's=0D
grandma linda A , write a message asking  for info the dr. say that her le=
g
size  is=0D
at a point to  think about surgery,, we were hoping that she would be a
little=0D
older  before that was going to take place but this child is growing like  =
a=0D
weed..lol so they feel its something to really start  considering.. we had=
a=0D
appt  last week to see the orthapedics,  but gabb's was a little under the
weather=0D
=2E..  but in all she  is doing really good ...  linda b mom to gabby 5yrs=
old=0D
(trisomy 14 mosaic) and kaylen 2yrs old=0D
=0D
=0D
In a  message dated 4/16/2008 7:57:58 P.M. Eastern Daylight  Time,=0D
jknowd@xxxxxxxxxx writes:=0D
I  remember someone asked  about lengthening their childs bones. I=0D
responded  with some  information about my tooth/gum problem, where the=0D
dentist had   peeled back the gum, scraped away cystic tissue, then=0D
some bone,  which  they mix with this "magic stuff", (don't know what=0D
it's  called). It is  supposed to grow more of your own bone. Well it=0D
is  about 8 weeks since the  original procedure. The area has  never=0D
really completely healed, and about  two weeks ago an  abscess=0D
developed, it got bigger, and a week ago I went  back to  the dentist,=0D
who put me back on anti-biotics, (my original dentist   was away).=0D
Yesterday I went back and had to have to whole thing opened  up  again,=0D
and cleaned out. While he was in there he said that the  bone was=0D
trying to grow, but my body was seeing it as a foreign invader  (like=0D
your finger would if it got a splinter in it, it becomes  inflamed).=0D
So  to keep on with the antibiotics. Washing mouth  several times a day=0D
(especially after meals) with warm salty water. He  has not sutured it=0D
this time, so it can drain.  (yuk).=0D
=0D
Anyway the purpose of this  email, is to draw  attention to the=0D
possibility of rejection with this sort  of  procedure.=0D
=0D
If it flares up again, I will lose the tooth. It is  so  frustrating=0D
(not to mention the expense, as we are not covered  for more  than=0D
basic dental treatment).=0D
=0D
I was supposed  to be seeing Tess  today, but I've cancelled, as I'm=0D
afraid of  passing on "bugs" to her. Not  to mention the possibility  of=0D
getting a friendly pat in the mouth as she  is prone to do  sometimes.=0D
=0D
=0D
=0D
Jocelyn, loving Nanna to Tess with   Trisomy 18, age 11 years=0D
=2E.=0D
=0D
Building ___ooOOoo__  Rainbows=0D
www.trisomyonline.org=0D
Families Helping Families   On-line=0D
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ar=0D
listings at AOL  Autos.=0D
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--=0D
No virus found in this incoming  message.=0D
Checked by AVG.=0D
Version: 7.5.519 / Virus Database:  269.23.0/1379 - Release Date: 15/04/20=
08
6:10  PM=0D
=0D
=2E


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