[tri-med] Re: Bone rejection-lengthening

Hey Jocelyn, this is linda b gabby's mom (trisomy 14 mosaic).. Gabb's  
grandma linda A , write a message asking for info the dr. say that her leg size 
 is 
at a point to think about surgery,, we were hoping that she would be a little  
older before that was going to take place but this child is growing like a  
weed..lol so they feel its something to really start considering.. we had a 
appt  last week to see the orthapedics, but gabb's was a little under the 
weather 
..  but in all she is doing really good ...  linda b mom to gabby 5yrs  old 
(trisomy 14 mosaic) and kaylen 2yrs old
 
 
In a message dated 4/16/2008 7:57:58 P.M. Eastern Daylight Time,  
jknowd@xxxxxxxxxx writes:
I  remember someone asked about lengthening their childs bones. I 
responded  with some information about my tooth/gum problem, where the 
dentist had  peeled back the gum, scraped away cystic tissue, then 
some bone, which  they mix with this "magic stuff", (don't know what 
it's called). It is  supposed to grow more of your own bone. Well it 
is about 8 weeks since the  original procedure. The area has never 
really completely healed, and about  two weeks ago an abscess 
developed, it got bigger, and a week ago I went  back to the dentist, 
who put me back on anti-biotics, (my original dentist  was away). 
Yesterday I went back and had to have to whole thing opened up  again, 
and cleaned out. While he was in there he said that the bone was  
trying to grow, but my body was seeing it as a foreign invader (like  
your finger would if it got a splinter in it, it becomes inflamed). 
So  to keep on with the antibiotics. Washing mouth several times a day  
(especially after meals) with warm salty water. He has not sutured it  
this time, so it can drain. (yuk).

Anyway the purpose of this  email, is to draw attention to the 
possibility of rejection with this sort  of procedure.

If it flares up again, I will lose the tooth. It is so  frustrating 
(not to mention the expense, as we are not covered for more  than 
basic dental treatment).

I was supposed to be seeing Tess  today, but I've cancelled, as I'm 
afraid of passing on "bugs" to her. Not  to mention the possibility of 
getting a friendly pat in the mouth as she  is prone to do sometimes.



Jocelyn, loving Nanna to Tess with  Trisomy 18, age 11 years
. 

Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families  On-line





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                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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