[tri-med] Re: Bone Age and Wilm's scans


----- Original Message -----
From: "Karen Schuler" <karens@xxxxxxxxxxxxxxxx>
> Alex had his abdo ultrasound a few weeks ago and it was all clear - thats
the good news :-))

Yippee!

>
> > So in 3 1/2 years his bone "age" has increased 6 1/2 years!!!!!! I am
guessing that because its less than 1 standard deviation that
> the "plan" will be to watch

Alex's bone age before the GHT was lagging almost 3.5 years. After 1.5 years
on the GHT he has "caught up". I was amazed.............

>- but given his problems with the hypothalamus I am concerned that there
>is a tumour or something
> sinister going on and causing excessive growth hormone........

Could they do a CT scan to rule out anything such as that?

>They may do another growth hormone test, but they are such fun -
> NOT!!!!

What type did he have before? Alex has had the induced hypoglycemia
testing.......nasty. Also the chlonidine/argenine testing....long but not
stressful. Like Marcus, Alex had a port placed from which all the blood
draws (9 draws in 4 hrs if I remember correctly) were taken. Plus the meds
make them sleep and that's what they want for the testing.

Michelle mom to Alex (14,partial trisomy 14 mosaic) and Molly (10)
MichiganUSA

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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