[tri-med] Re: Bio-ethicists

Karen <karens@xxxxxxxxxxxxxxxx> wrote:
 
>Another rule of thumb - if when the doctor listens to the heart
and the sound is not as loud - thats usually NOT a good sign.

This has worried me somewhat as the pediatrician couldn't hear her murmer the 
last couple visits, but whenever she sees the cardiologist after these 
visits...everything was unchanged. Therefore, I believe the murmer's not as 
loud as it used to be which can mean the hole has closed  or the pressure is 
starting to equilized. Since the VSD at 7mm is too big to close on it's 
own...it would be bad if it does because of the double outlet right ventricle, 
it'd only mean the pressure is equilizing...another bad thing!
 
>However if your cardiologist is not being agressive and you want him to be, 
>don't
balk at changing doctors. I can't remember what state you are in, but I know
that between list folk and Dr Carey that we could find a doctor that would
give you an honest and unbiased explanation of the situation.
 
I agreed. Up to this point, he's the best doctor we've dealt with and we like 
to stay with him, but we will not hesitate to change if our views on caring for 
Rachel no longer coincide...but it is difficult to find a good doctor though. 
We are in New York...about 60 miles north of the city.

>We went to the doctor to fix a problem and we accepted with blind faith
whatever they said. 
 
I used to be one of those until 5 yrs ago when my father passed away on the 
operation table from cardiac failure when he went in for prostate surgery.

>In the meantime I will assume that you do and will send off list some
reading material along with John's email address.
 
That will be great, Karen. Thank you!
 
 


Katrina 
Mom to Rachel (full T18 b.Aug 4,2003) 
Patterson, New York USA
http://users.rcn.com/pngai/rachel

---------------------------------
Do you Yahoo!?
Yahoo! Finance Tax Center - File online. File on time.

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: