[tri-med] Re: BettyRe: Quest regarding Advocate at Hospital

Hello Betty,

Am I correct to say that there are special individuals as opposed to one person 
who has the role of advocate? 

Thanks!

Barb

> From: bhrae@xxxxxxx
> To: Tri-med@xxxxxxxxxxxxx
> Subject: [tri-med] Re: Quest regarding Advocate at Hospital
> Date: Thu, 11 Dec 2008 15:04:14 -0800
> 
> Barb:
> >Does anyone have an experience to share related to having a valuable 
> >advocate at their children's >Hosptal? 
> 
> >I am referring to someone who acts to co-ordinate care for the complex kids, 
> >help parents navigate, >and act as advocate when necessary. 
> 
> 
> I've had some good experience with advocates.  One particular lady who was an 
> Infant Consultant with Infant Development here in our community.  Also there 
> was one maybe even more nurses who stood up to the pediatrician in our 
> daughters defence.   Also at Children's Hospital there was one particular 
> nurse who was totally caring, encouraging and supportive and could not 
> believe what the Neonantologist was so dismal.  So defintely we had some good 
> experiences.  
> 
> Betty mom to Pamela((Tri18)13yo, very active, charismatic personality, tube 
> fed, reflux,scoliosis fixed, also mom to Tina 27, Allan 22, Annette 20, 
> Jennifer 15, Grandma to Lawsen 2 yo and wife to Jim (British Columbia, Canada)
> 
> 
> 
> 
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
> 

_________________________________________________________________


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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