[tri-med] Re: Behavior Modification

it is nothing you did to make your son this whay =2E it is a fluck =2E i
still plan on having one more hopefully, if i can talk the boyfreind
in to it=2E i was told in the world there our around 300 cases=2E the
doctors taylor sees only 34 other docotrs have seen a other triosmy 8
mosaic=2E and get this a grown man with triosmy 8 mosaic had 3 child of
his own=2Ehe holds a job and is a father=2E so that tells you
something=2Egina son taylor triosmy 8 mosaic

---- Original Message ----
From: basil1=5F2000@yahoo=2Eco=2Euk
To: tri-med@freelists=2Eorg
Subject: RE: [tri-med] Re: Behavior Modification
Date: Sat, 29 Jul 2006 17:57:32 +0000 (GMT)

>
>Thanks for clearing that up Gina, when my son was diagnosed 2 years
>ago the genetisist told us that there were around 150 reported cases
>world wide and that it was very rare and that she had not come across
>a case in her 30 year career=2E Could you let me know where  your
>figure came from I would be interested to find out more as I hate
>seeing the genetisist as she looks at my son like he is some animal
>in a zoo=2E I think that because the UK is so much smaller than USA
>there is obviouslt less population and therefore less cases of
>various syndromes=2E=20
> I saw my obs and gyny this week to ask about further pregnancies, he
>told me that he thinks it was the syndrome that led  to my sons
>distress that caused him to be delivered 3 months early=2E I am
>obviously very anxious about having further children=2E
> Anyway, thanks again Gina=2E
>=20
> Katy=2E
>----- Original Message ----
>From: Gina Anderson <ghulce@portup=2Ecom>
>To: tri-med@freelists=2Eorg
>Sent: Friday, 28 July, 2006 10:38:58 PM
>Subject: [tri-med] Re: Behavior Modification
>
>i'm happy to see more triosmy 8 mosaic on the list gina son taylor
>----- Original Message -----=20
>From: "Gina Anderson" <ghulce@portup=2Ecom>
>To: <tri-med@freelists=2Eorg>
>Sent: Friday, July 28, 2006 4:36 PM
>Subject: [tri-med] Re: Behavior Modification
>
>
>
>there is 300 cases of triosmy 8 that our reported to day gina son
>taylor
>triosmy 8 mosaic 6 years old=2E
>----- Original Message -----=20
>From: "Katy Roberts" <basil1=5F2000@yahoo=2Eco=2Euk>
>To: <tri-med@freelists=2Eorg>
>Sent: Friday, July 28, 2006 12:48 PM
>Subject: [tri-med] Re: Behavior Modification
>
>
>
>I  have just read your email and although I cannot help with the
>therapist
>issue as we live in the UK=2E I was interested to hear you have a
>little boy
>with Trisomy 8 mosiac  as we have a 2 year old with the same and I
>know Gina
>has a little boy also=2E I also understand that because it is mosaic
>that it
>can occur anywhere in the body, so our boys may well be all quite
>different
>but there may be some similarities=2E My son has been through a few
>dramas
>since he was born 3 months premature (was your son born prem or full
>term=3F)
>such as a malrotation correction, he has an eye opacity, a missing
>corpus
>callossum (center part to brain) and poor muscle tone=2E But beside all
>this
>he is an amazing little boy with a wicked sense of humor and he is so
>determined=2E
> I would be very keen to keep in touch with you, as you are probably
>aware
>there are only a few of us world wide and i was so relieved when I
>first
>heard from Gina on this web site=2E If I hear of anything that can help
>I will
>be in touch=2E
> Katy=2E son with Trisomy 8 mosaic=2E
>----- Original Message ----
>From: Ginger Adams <gadams93@tampabay=2Err=2Ecom>
>To: trisomy <tri-med@freelists=2Eorg>
>Sent: Thursday, 27 July, 2006 10:29:58 PM
>Subject: [tri-med] Behavior Modification
>
>We have an eight year old boy diagnosed at the age of one with
>trisomy
>mosaic 8=2E  He has had 12 operations to correct feet and tendon issues
>and
>has been through therapy for audio recognition=2E  He is involved in
>mainstream education, is functioning above his grade level in IQ=2E=20
>Our
>problem is he has a focus issue where when he focuses on the computer
>or a
>book, he can not focus to go to the bathroom=2E  He has developed
>almost a
>compulsive nature toward electronic games to the point of sneaking
>time on
>the computer when he has been asked to play with books, puzzles, or
>toys=2E
>We would like the name of a therapist is the Pinellas County, FL
>area, who
>can help us with positive Behavior Modification=2E  We do not use
>punitive
>actions (time outs, etc=2E) as they only seem to frustrate him and he
>can not
>seem to relate them to the misbehavior=2E  We need tools to help this
>young
>man=2E  We know the Behavior Modification has to start with us; but we
>don't
>know what to do=2E  Does anyone know
> o
> f a person in our area whop specializes in this particular issue=2E=20
>thank
>you in advance=2E
>                  Building =5F=5F=5FooOOoo=5F=5F Rainbows
>                       www=2Etrisomyonline=2Eorg
>                  Families Helping Families On-line
>
>
>
>
>
>
>
>                  Building =5F=5F=5FooOOoo=5F=5F Rainbows
>                       www=2Etrisomyonline=2Eorg
>                  Families Helping Families On-line
>
>
>
>                  Building =5F=5F=5FooOOoo=5F=5F Rainbows
>                       www=2Etrisomyonline=2Eorg
>                  Families Helping Families On-line
>
>
>
>                  Building =5F=5F=5FooOOoo=5F=5F Rainbows
>                       www=2Etrisomyonline=2Eorg
>                  Families Helping Families On-line
>
>
>
>
>
>
>
>                  Building =5F=5F=5FooOOoo=5F=5F Rainbows
>                       www=2Etrisomyonline=2Eorg
>                  Families Helping Families On-line
>


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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