[tri-med] Re: Behavior Modification

I  have just read your email and although I cannot help with the therapist 
issue as we live in the UK. I was interested to hear you have a little boy with 
Trisomy 8 mosiac  as we have a 2 year old with the same and I know Gina has a 
little boy also. I also understand that because it is mosaic that it can occur 
anywhere in the body, so our boys may well be all quite different but there may 
be some similarities. My son has been through a few dramas since he was born 3 
months premature (was your son born prem or full term?) such as a malrotation 
correction, he has an eye opacity, a missing corpus callossum (center part to 
brain) and poor muscle tone. But beside all this he is an amazing little boy 
with a wicked sense of humor and he is so determined.
 I would be very keen to keep in touch with you, as you are probably aware 
there are only a few of us world wide and i was so relieved when I first heard 
from Gina on this web site. If I hear of anything that can help I will be in 
touch.
 Katy. son with Trisomy 8 mosaic.
----- Original Message ----
From: Ginger Adams <gadams93@xxxxxxxxxxxxxxx>
To: trisomy <tri-med@xxxxxxxxxxxxx>
Sent: Thursday, 27 July, 2006 10:29:58 PM
Subject: [tri-med] Behavior Modification

We have an eight year old boy diagnosed at the age of one with trisomy mosaic 
8.  He has had 12 operations to correct feet and tendon issues and has been 
through therapy for audio recognition.  He is involved in mainstream education, 
is functioning above his grade level in IQ.  Our problem is he has a focus 
issue where when he focuses on the computer or a book, he can not focus to go 
to the bathroom.  He has developed almost a compulsive nature toward electronic 
games to the point of sneaking time on the computer when he has been asked to 
play with books, puzzles, or toys.  We would like the name of a therapist is 
the Pinellas County, FL area, who can help us with positive Behavior 
Modification.  We do not use punitive actions (time outs, etc.) as they only 
seem to frustrate him and he can not seem to relate them to the misbehavior.  
We need tools to help this young man.  We know the Behavior Modification has to 
start with us; but we don't know what to do.  Does anyone know
 o
 f a person in our area whop specializes in this particular issue.  thank you 
in advance.
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line







                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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