Karen,
thanks for you for the info, anything else you have on mosiac partial
trisomy 1p would be great. I agree with you about the non documented cases.
When
I talked to the genetics team, they said that there may be and probably is
many children walking around with what Julian has. The ONLY reason why Julian
was even suspected of having a chromosome disorder was because of his failure
to thrive. The way the Dr. put it, is that other children may be doing as
"well" as Julian and not have the issues with weight like he does, and may
just be dismissing it as just having learning delays. Don't get me wrong
Julian
has his share of problems but compared to the other 15 recorded cases of
what he has, we consider him extremely lucky. Although what the future holds
for him nobody knows because his case is so rare. Again thanks for all the
help, any other info you have i would really appreciate it.
Sarah
Aunt to Julian mosiac partial trisomy1p
Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line