[tri-med] Re: Baby Claire - Neu/Aud appt update

BTW - Neu appt, fairly unproductive.
He said that we could come back in 2 months for an EEG...
I asked if he'd treated any other T18 babies... he said he hadn't seen any 
older that 6 months.
I got the feeling that he didn't think it was worth the effort and he 
'would' do it if we insisted...
On the other hand, my husband felt that the neu intended to do an EEG in 2 
months, just not now since she is having no (visible) seizures.
He also said Claire didn't have good 'muscle tone' . I immediately went on 
the defense and told him that she has rolled over and is very strong.  I 
felt that he stereotyped her.  My husband didn't feel that way at all.
Two very different people came out of the same office with two very 
different opinions of what went on in there... it is crazy.  Looking 
forward to seeing the report... guess that will sum it all up for us.

** Has anyone heard of a dilated ventricle (in the brain).... it is 
something the drs saw in the prenatal u/s, but we haven't explored.

Thanks again everyone!

Debbie and Baby Claire
http://debbwebb.com/Claire/

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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