[tri-med] Re: Aus Alex Update

----- Original Message ----- 
From: "Nanci Grimes"
> Before Soleah's recent spinal surgery, her surgery mentioned that he was 
> concerned with not being able to do an MRI prior to the surgery.  He 
> indicated that many times these kids with chromosome have unusual spinal 
> anomolies that they discovered only before doing this kind of surgery.

Yes - thats very true. We only discovered Alex's because of the ultrasounds 
for Wilm's and x-rays of his legs and hips when he started walking because 
one leg was shorter than the other (because of the mosaicism one side grows 
faster than the other).

Life consists not in holding good cards but in playing those you hold well.
                                            -- Josh Billings

Keep Looking For Rainbows!!
   _--_|\
 /Karen \
 \ _.--._ /
          v Karen, Mum to Alex (12 years, T-18 Mosaic)
http://members.optushome.com.au/karens

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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