[tri-med] Re: Atouching story

This was a very special e-mail - thanks for sending it - it was a blessing to
read it.
Gary (and Elizabeth) parents of Daniel (17), Michael (15), Joshua (12), Rachel
(10), John (9), Nathan (7), Esther (4) and Stephen (1) (T13 Mosaic born 10/5/04)

Barbara Farlow wrote:

>  Hi Everyone   I was very moved by Catherine's beautiful words today on the
> tri-med site (restated below), and thought I would share some background. I
> wrote a letter to Annie's primary pediatrician, a doctor whom we placed
> greattrust and even assumed a friendship existed. Unfortunately, the records
> reveal a defile of this trust and friendship. It is quite apparent that this
> physician knew that Annie's respiratory distress was due to her trachea
> closing. He denied her the option of any treatment whatsoever; surgical
> repair or palliation. He did nothing.   I wrote him a long letter, which
> included the line:   Annie was not perfect in the traditional sense, but for
> the purpose for which God made her, she was perfect.   Catherine was
> thinkingabout these words when she ran to the WalMart and took a short cut
> through the toy section. The doctor to which she makes reference is
> currentlythe head of cardiology of a large Toronto teaching hospital.   I
> wasso moved by her words that I forwarded them to our geneticist, the senior
> neurologist who is conducting a full review of Annie's records and the Vice
> President who is overseeing the review. I hope they have even half of the
> effect on them as they have had on many folks on the tri-med site so far.
> Barb  Mom to Annie 05/25/05-08/12/05     I saw a dad today, at Wal-Mart.
> He was with his severely disabled daughter.
> They were in the toy section.
> He was showing her all kinds of neat stuff.
> She was smiling and waving her hands.
> She looked like she was having a wonderful time.
> So did her dad.
> She was in a wheelchair
> and had a ventilator
> and he had to keep suctioning her.
> If her purpose is to help her dad to become all that he can be
> and far more than he could ever have imagined, she is perfect.
> Once I took Bec to a specialist who always had a flock of residents in tow.
> He said, "We're not going to fix her so we don't need to know
> what else is wrong and you don't need to come back"
> Ever since then I have thought about him and what he missed out on.
> If Becky's purpose here on earth was a final exam for this specialist
> and one day when he stands before God
> and tries to point out the hundreds of doctors he has trained,
> or the hundreds of patient's lives he has extended or improved,
> God will stop him and say, "No, none of those count.
> Only the one that I sent to you. What did you do to help her?
> How did you extend or improve her life."
> If her purpose was to help this doctor become all that he could be
> and far more than he could ever have imagined, she is perfect.
>
> Catherine, mom of Becky (31yrs. Trisomy 13 Mosaic)
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line


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                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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