[tri-med] Re: Atouching story

Thanks Barb!

-----Original Message-----
>From: Barbara Farlow <b_farlow@xxxxxxxxxxx>
>Sent: Apr 28, 2006 12:47 PM
>To: undisclosed-recipients@null, null@null
>Subject: [tri-med] Atouching story
>
> Hi Everyone   I was very moved by Catherine's beautiful words today on the
>tri-med site (restated below), and thought I would share some background. I
>wrote a letter to Annie's primary pediatrician, a doctor whom we placed
>greattrust and even assumed a friendship existed. Unfortunately, the records
>reveal a defile of this trust and friendship. It is quite apparent that this
>physician knew that Annie's respiratory distress was due to her trachea
>closing. He denied her the option of any treatment whatsoever; surgical
>repair or palliation. He did nothing.   I wrote him a long letter, which
>included the line:   Annie was not perfect in the traditional sense, but for
>the purpose for which God made her, she was perfect.   Catherine was
>thinkingabout these words when she ran to the WalMart and took a short cut
>through the toy section. The doctor to which she makes reference is
>currentlythe head of cardiology of a large Toronto teaching hospital.   I
>wasso moved by her words that I forwarded them to our geneticist, the senior
>neurologist who is conducting a full review of Annie's records and the Vice
>President who is overseeing the review. I hope they have even half of the
>effect on them as they have had on many folks on the tri-med site so far.  
>Barb  Mom to Annie 05/25/05-08/12/05     I saw a dad today, at Wal-Mart.
>He was with his severely disabled daughter.
>They were in the toy section.
>He was showing her all kinds of neat stuff.
>She was smiling and waving her hands.
>She looked like she was having a wonderful time.
>So did her dad.
>She was in a wheelchair
>and had a ventilator
>and he had to keep suctioning her.
>If her purpose is to help her dad to become all that he can be
>and far more than he could ever have imagined, she is perfect.
>Once I took Bec to a specialist who always had a flock of residents in tow.
>He said, "We're not going to fix her so we don't need to know
>what else is wrong and you don't need to come back"
>Ever since then I have thought about him and what he missed out on.
>If Becky's purpose here on earth was a final exam for this specialist
>and one day when he stands before God
>and tries to point out the hundreds of doctors he has trained,
>or the hundreds of patient's lives he has extended or improved,
>God will stop him and say, "No, none of those count.
>Only the one that I sent to you. What did you do to help her?
>How did you extend or improve her life."
>If her purpose was to help this doctor become all that he could be
>and far more than he could ever have imagined, she is perfect.
>
>Catherine, mom of Becky (31yrs. Trisomy 13 Mosaic)
>
>
>
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: