--- Therese <therese@xxxxxxxxxxxxxxxxxxxxxxx> wrote: > Hello, > I friend of mine had a grandchild with a > > double outlet right Ventrical with a VSD > > Anyone on this informative list familiar with > this???? > Our Rachel has a DORV large VSD and a small ASD. Her heart condition has essentially been unchanged since birth (at least that's what her cardiologist tells us). She's on lasix & digoxin since 3 months of age. Her O2 sat was great from birth to 7 months, in the 90s; it dropped to the upper 80s after her G-tube surgery at 7 months. She is now recovering from her first pneumonia and requires oxygen. We don't know yet if she can be weaned off. At 9 months, we decided against heart surgery for Rachel. She was doing great without it and we couldn't make her go thru a major surgery like that. We did discussed heart surgery with a surgeon before Rachel was borned (before her T18 diagnose). The recommendation was to fix the heart within 2-3 months of birth, otherwise there's a good chance for other complications to develop. I am not sure if any of this is helpful. Hope everything goes ok with your friend's grandchild. Regards, Katrina Mom to Rachel (full T18 b.Aug 4,2003) and Alec (June 4, 2005) Patterson, New York USA http://users.rcn.com/pngai/rachel __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com Building ___ooOOoo__ Rainbows www.trisomyonline.org Families Helping Families On-line