[tri-med] Re: Anyone with Trisomy 1p?

Hi all.  we have no problem telling you about our daughter but right now our 
schedules are real busy right now.  I will right when I actually get a break 
in life and tell ya'll some of the things we have been through.  In the mean 
time you can check out www.helpcjwalk.com.  It is a website we have to help 
raise funds to get her into an intensive Pt program.  Some of ya'll might be 
interested in this it is www.therapies4kids.com.  The website above will 
give you a little bit of info on CJ.

Tiffiney & MANUEL DEJESUS
----- Original Message ----- 
From: "Corey & Dana" <coreydana@xxxxxxxxxxx>
To: "Tri-Med" <Tri-Med@xxxxxxxxxxxxx>
Sent: Tuesday, April 24, 2007 6:00 PM
Subject: [tri-med] Re: Anyone with Trisomy 1p?


> Hello Karen and welcome to the list Manuel!
>
> Actually, my nephew Noah had Trisomy 2.  Specifically, partial Trisomy =
> of
> 2p+ (13-23).  A Trisomy 1 family already introduced themselves but I =
> believe
> I have another Trisomy 1 family/contact.  I will e-mail you off-list =
> with
> their name and contact information.
>
> I would love to her more about your daughter when you are ready to =
> share.
>
> Angel blessings to you and your family,
>
> Dana
> Auntie to Noah Thomas Campbell
> Partial Trisomy of 2p+
> October 10, 2000 - May 14, 2001
> --------------------------------------------------------
> Dana Tehako-Esser
> President & Chief Executive Officer
> Noah's Never Ending Rainbow
> 7737 6th Avenue
> Kenosha, Wisconsin 53143
> Phone/=A0 262.605.3690
> Business E-mail/  dana@xxxxxxxxxxxxxxxxxxxxxxxxxxx
> Personal E-mail/  coreydana@xxxxxxxxxxx
> Website/  www.noahsneverendingrainbow.org
>
> ------------------------------
> From: "Karen" <karens@xxxxxxxxxxxxxxxx>
> Subject: [tri-med] Re: Anyone with Trisomy 1p?
> Date: Sat, 21 Apr 2007 10:29:12 +1000
>
> ----- Original Message -----
> From: "Hotmail"
>> We were just wondering if anyone has a child with Trisomy 1p?  Our=20
>> little girl has it.  We just wanted to see what to expect.
>
> Welcome Manuel. While many of us have children with different trisomy
> flavours to your little girl many of the issues are similar, so the folk =
> on
> the list are a great source of assistance.
>
> Please tell us more about your daughter. We would love to get to know =
> her
> and your family better.
>
> There a few folk around who have children with a trisomy 1 disorder. =
> Dana
> immediately comes to mind (Noahs Never Ending Rainbow
> www.noahsneverendingrainbow.org) and I am sure that she will respond =
> when
> she sees your email. SOFT (www.trisomy.org) have a trisomy 1 contact =
> person,
> have you contacted Barb?
>
> Life consists not in holding good cards but in playing those you hold =
> well.
>                                            -- Josh Billings
>
> Keep Looking For Rainbows!!
>   _--_|\
> /Karen \
> \ _.--._ /
>          v Karen, Mum to Alex (12 years, T-18 Mosaic)
> http://members.optushome.com.au/karens
> ------------------------------
>
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
>
> 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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