[tri-med] Re: Anyone with Trisomy 1p?

Hello Karen and welcome to the list Manuel!

Actually, my nephew Noah had Trisomy 2.  Specifically, partial Trisomy =
of
2p+ (13-23).  A Trisomy 1 family already introduced themselves but I =
believe
I have another Trisomy 1 family/contact.  I will e-mail you off-list =
with
their name and contact information.

I would love to her more about your daughter when you are ready to =
share.

Angel blessings to you and your family,

Dana
Auntie to Noah Thomas Campbell
Partial Trisomy of 2p+
October 10, 2000 - May 14, 2001
--------------------------------------------------------
Dana Tehako-Esser
President & Chief Executive Officer
Noah's Never Ending Rainbow
7737 6th Avenue
Kenosha, Wisconsin 53143
Phone/=A0 262.605.3690
Business E-mail/  dana@xxxxxxxxxxxxxxxxxxxxxxxxxxx
Personal E-mail/  coreydana@xxxxxxxxxxx
Website/  www.noahsneverendingrainbow.org

------------------------------
From: "Karen" <karens@xxxxxxxxxxxxxxxx>
Subject: [tri-med] Re: Anyone with Trisomy 1p?
Date: Sat, 21 Apr 2007 10:29:12 +1000

----- Original Message -----
From: "Hotmail"
> We were just wondering if anyone has a child with Trisomy 1p?  Our=20
> little girl has it.  We just wanted to see what to expect.

Welcome Manuel. While many of us have children with different trisomy
flavours to your little girl many of the issues are similar, so the folk =
on
the list are a great source of assistance.

Please tell us more about your daughter. We would love to get to know =
her
and your family better.

There a few folk around who have children with a trisomy 1 disorder. =
Dana
immediately comes to mind (Noahs Never Ending Rainbow
www.noahsneverendingrainbow.org) and I am sure that she will respond =
when
she sees your email. SOFT (www.trisomy.org) have a trisomy 1 contact =
person,
have you contacted Barb?

Life consists not in holding good cards but in playing those you hold =
well.
                                            -- Josh Billings

Keep Looking For Rainbows!!
   _--_|\
 /Karen \
 \ _.--._ /
          v Karen, Mum to Alex (12 years, T-18 Mosaic)
http://members.optushome.com.au/karens
------------------------------


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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