[tri-med] Re: Anyone with Trisomy 1p?

----- Original Message ----- 
From: "Hotmail"
> We were just wondering if anyone has a child with Trisomy 1p?  Our little 
> girl has it.  We just wanted to see what to expect.

Welcome Manuel. While many of us have children with different trisomy 
flavours to your little girl many of the issues are similar, so the folk on 
the list are a great source of assistance.

Please tell us more about your daughter. We would love to get to know her 
and your family better.

There a few folk around who have children with a trisomy 1 disorder. Dana 
immediately comes to mind (Noahs Never Ending Rainbow 
www.noahsneverendingrainbow.org) and I am sure that she will respond when 
she sees your email. SOFT (www.trisomy.org) have a trisomy 1 contact person, 
have you contacted Barb?

Life consists not in holding good cards but in playing those you hold well.
                                            -- Josh Billings

Keep Looking For Rainbows!!
   _--_|\
 /Karen \
 \ _.--._ /
          v Karen, Mum to Alex (12 years, T-18 Mosaic)
http://members.optushome.com.au/karens

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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