[tri-med] Re: Anyone have any insight or advice???

>
> --- Karen Schuler <karens@xxxxxxxxxxxxxxxx> wrote:
>
- he is now at age 6
> > at least as thick as a match stick (you can see why
> > I said they do it for
> > function not appearance).

SOOOOOO...can I assume that if Devon's penis is bigger than a match stick
(YIKES...I've never seen anything like that) that he doesn't have micro
penis??? Does he maybe have the hypoplastic thing??? Devon's doctors have
never mentioned these terms before...although I do think Devon is smaller
than average...AND he's retracted but that has improved over the years
too...he actually pokes out a little now some of the time (sorry people :o(
Judging  from the size when he is sleeping and I change him (again
folks...sorry ) he's a little fatter in circumference than my pinky and
about an inch and a half...mind you I've never measured him :o) He's six
years old now...is that abnormal???
Like Holly...I'm a little embarrassed even being curious about it...and I
know it doesn't matter...but it's something I've always thought  was a
little out of the norm on Devon but have always been too embarrassed to ask
when I'm face to face with a doctor. And if some of you remember the "Free
Peetie" saga a few years ago then you know why I wouldn't have asked that
urologist anything I didn't absolutely have to.
Love,
Penny...devoted wife to Joe and "Mom" to Nick (10 1/2 yrs...lover of
Pokemon, Legos, Pizza, cheese sticks and chocolate icecream ) and "Mommy" to
Devon (AKA-Stinky Boy..or Devonrude...Lover of Bear, Stuart Little, Barney,
Blue, Rolie Polie Olie, Pooh and Co. and food in general, 6 years old
(6-15-95) !!! Full Trisomy 13 w/balanced translocation 5 and 13)...Brat and
KC (the feline children)
:o) DeLand, Florida
Meet our family at http://www.trisomyonline.org/victor.htm  (Compliments of
my dear friend Karen!)
And last but not least, check out the homepage I made!
http://www.geocities.com/Heartland/Shores/1963/index.html
The stone that was rejected by the builders, has become the cornerstone
(Psalm 118)



                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
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