[tri-med] Re: Any info on Dyspraxia?

Is Effalex the same as ground flax seed. This is what I give to Luke each 
day...omega 3 fatty acid. Just wondering if there is something better out 
there?

Vicki Christensen, mom to Luke (partial t-14)
----- Original Message ----- 
From: "jwaite" <jwaite@xxxxxxxxxxxxx>
To: <tri-med@xxxxxxxxxxxxx>
Sent: Monday, September 17, 2007 10:20 AM
Subject: [tri-med] Re: Any info on Dyspraxia?


>
> ----- Original Message ----- 
> From: "Karen Schuler" <trisomy@xxxxxxxxxxx>
>> I took an unusual approach with Alex, it was slow and painful, but it
>> worked.
>
> But look at the results!!!!!!!!!!!!
>
> I took a similar path with our Alex, something nobody suggested and I
> created as I gathered info. It was definately a labor of love.....for
> years...with many, many, many hours of work.
>
> Karen, can you believe what we managed to come up with BEFORE THE 
> INTERNET?
> Talk about taking swings at the ball in the dark.
>
>
>> Firstly - start Stephen on long chain fatty acids if you havent already. 
>> I
>> use Effalex which is no longer available in the US but there are plenty 
>> of
>> alternatives. I use Effalex because thats the long chain fatty acids that
>> were actually studied and found to be effective in treating dyspraxia.
>> They
>> are not a cure - but it helps big time. It takes about three months to 
>> see
>> the full results but they are there.
>
> Jim was my research guy and he fell upon the EFA's. After much looking he
> purchased some (ours in grain based, not fish--which was a personal choice
> based on fish contaminate worries) and began taking it himself. This was
> approx. 12 years ago.
>
> After we started Alex on the EFA's it was, as Karen said, some months and 
> we
> saw HUGE changes in Alex's abilities!
> Some days I wonder, if we'd have known about the EFA's at birth and 
> started
> Alex then would he be even further than he is now?
>
> I mean, that first year Alex was a lump of floppy boy who had basically no
> recognizable responses to stimuli (facial, vocal, physical) who couldn't
> suck..........boy has he come a LONG way.
>
> Alex was never diagnosed with Dyspraxia, frankly I'd not heard of it until
> some years ago on this list. But early on in testing we were told that
> Alex's level of understanding (receptive language) was greater by years 
> than
> .....oh shoot, can't remember the word!!!!!! Than his ability to get 
> things
> out......what is the word?????  :0)
> ironic isn't it? lol
> Opposite of receptive language........
>
> Michelle mom to Alex (20, partial trisomy 14 mosaic) and Molly (16)
> MichiganUSA
>
>
>                  Building ___ooOOoo__ Rainbows
>                       www.trisomyonline.org
>                  Families Helping Families On-line
> 

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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