[tri-med] Re: Anthony Arritola CODE BLUE Prayer Request

Continued prayers will keep coming your way.

Ruth, wife to Rudy, mom to Brendon (20), Scott (18), Joshua (15), Matthew
Rudy
(full T18, born 09/13/01, Rudy Matthew (born 08/13/04)...and new little
peanut due 08/23/06.
http://members.cox.net/t18mom

Character cannot be developed in ease and quiet. Only through experience of
trial and suffering can the soul be strengthened, ambition inspired, and
success achieved. ~Helen Keller

> -----Original Message-----
> From: tri-med-bounce@xxxxxxxxxxxxx
> [mailto:tri-med-bounce@xxxxxxxxxxxxx]On Behalf Of Janina Arritola
> Sent: Saturday, June 17, 2006 6:35 PM
> To: 'Janina Arritola'; tri-family@xxxxxxxxxxxxx; tri-med@xxxxxxxxxxxxx;
> Livingwithtrisomy13@xxxxxxxxxxxxxxx; Trisomy13Support@xxxxxxxxxxxxxx
> Cc: 'Stacy Simpson Assaf'; art_e@xxxxxxxxxxxxxxxxxxxxxx;
> hslack@xxxxxxxxxxxxx; 'Jane & Don Radman'; 'Jeff Bowling';
> jamburgy@xxxxxxxxxxxxxxxxx; 'Jessica Giles'; 'Hale, Joseph';
> placesga@xxxxxxxxxxxxx; jeaton@xxxxxxxxxxxxxxxxx; 'Karen & Rich';
> katrinagallow@xxxxxxxxxxxx; 'Laura Hudson Cantwell'; 'Lori Konopka';
> 'Lucia Eyzaguirre'; 'Mirel Schmidt'; 'Olga Galassi';
> kpchiver@xxxxxxxxxxxxx; 'Richard Tyler'; 'Rick Aritola';
> Gaubert3@xxxxxxx; saemrick@xxxxxxx; 'tarissa hughes';
> bpeyza@xxxxxxxxxxxxx; chris_e@xxxxxxxxxxxxxxxxxxxxxxxx; 'Brenda Perez';
> waypree@xxxxxxx; priscilla_hill@xxxxxxxxxxxx; houlihant@xxxxxxxxxxxxx;
> joandtom@xxxxxxxxxxxxx; mvagedes@xxxxxxxxxxx; Lyonstunes@xxxxxxx;
> 'courtney holihen'; earne.bentley@xxxxxxxxx;
> revministrylove06@xxxxxxxxx; zmullers@xxxxxxxxxxxxx; 'Twinker Mason';
> kchaskins1@xxxxxxxxx; techyedutton@xxxxxxxxx; feeleym@xxxxxxxxxxxxx;
> marykellett@xxxxxxxxxxxxxxxxxxxxxxxxxxx; monica@xxxxxxxxxxxxxxx;
> kwilkins@xxxxxxxxxxxxxxxxxx; gohope@xxxxxxxxxxxxx;
> catherine@xxxxxxxxxxxxxxxxxxx; Z Mullers
> Subject: [tri-med] Anthony Arritola CODE BLUE Prayer Request
> Importance: High
>
>
> Anthony continues to drop in heart rate and have respirations over 97
> throughout the past few days.  But this morning, his respiration almost
> stopped and was on the brink of Code Blue.  We watched him all day and
> tonight shortly after 9:00 pm,  he stopped breathing and went full code
> blue.  Within minutes he was breathing again and we are moving him back
> to the ICU.  This cycle is getting shorter and shorter .. Please pray
> for our family as we are dealing with End of Life issues.
>
> Janina and Rick and family
> Big Brother Lorenzo Arritola - 9 years old
> Big Brother James-Christian Gregory - 9 years old
> Big Brother Tray Gregory - soon to be 11 years old - four days before
> Anthony turns one year old
>
>
> -----Original Message-----
> From: Janina Arritola [mailto:JaninaArritola@xxxxxxxxxxxx]
> Sent: Tuesday, June 13, 2006 11:04 PM
> To: 'Janina Arritola'; 'tri-family@xxxxxxxxxxxxx';
> 'tri-med@xxxxxxxxxxxxx'; (Livingwithtrisomy13@xxxxxxxxxxxxxxx);
> 'Trisomy13Support@xxxxxxxxxxxxxx'
> Cc: 'Stacy Simpson Assaf'; 'art_e@xxxxxxxxxxxxxxxxxxxxxx';
> 'hslack@xxxxxxxxxxxxx'; 'Jane & Don Radman'; 'Jeff Bowling';
> 'jamburgy@xxxxxxxxxxxxxxxxx'; 'Jessica Giles'; 'Hale, Joseph';
> 'placesga@xxxxxxxxxxxxx'; 'jeaton@xxxxxxxxxxxxxxxxx'; 'Karen & Rich';
> 'katrinagallow@xxxxxxxxxxxx'; 'Laura Hudson Cantwell'; 'Lori Konopka';
> 'Lucia Eyzaguirre'; 'Mirel Schmidt'; 'Olga Galassi';
> 'kpchiver@xxxxxxxxxxxxx'; 'Richard Tyler'; 'Rick Aritola';
> 'Gaubert3@xxxxxxx'; 'saemrick@xxxxxxx'; 'tarissa hughes';
> 'bpeyza@xxxxxxxxxxxxx'; 'chris_e@xxxxxxxxxxxxxxxxxxxxxxxx'; 'Brenda
> Perez'; 'waypree@xxxxxxx'; priscilla_hill@xxxxxxxxxxxx;
> 'houlihant@xxxxxxxxxxxxx'; 'joandtom@xxxxxxxxxxxxx';
> 'mvagedes@xxxxxxxxxxx'; 'Lyonstunes@xxxxxxx'; 'courtney holihen';
> 'earne.bentley@xxxxxxxxx'; 'revministrylove06@xxxxxxxxx';
> 'zmullers@xxxxxxxxxxxxx'; 'Twinker Mason'; 'kchaskins1@xxxxxxxxx';
> 'techyedutton@xxxxxxxxx'; 'feeleym@xxxxxxxxxxxxx';
> 'marykellett@xxxxxxxxxxxxxxxxxxxxxxxxxxx'; 'monica@xxxxxxxxxxxxxxx';
> 'kwilkins@xxxxxxxxxxxxxxxxxx'; 'gohope@xxxxxxxxxxxxx';
> catherine@xxxxxxxxxxxxxxxxxxx; Z Mullers
> Subject: Prayer Request Update: Anthony Arritola (t13)
>
> Quick Update:
> Anthony has once again returned to the Pediatric ICU
> Day 39 of this Hospitalization
>
> Congestive Heart Failure (CHF) Increases:
> Anthony was diagnosed with CHF at birth and has miraculously survived
> the odds thus far . astonishing docs.  But now, with all the additional
> stresses to multiple body systems, little Anthony's heart is behaving
> like a child that really does have heart failure.  The volume on his
> heart and lungs is A LOT and causing him to breathe rapidly and very
> heavily (an exhausting task at times).  And when they try to diurese
> him, he dumps all his volume out his ostomy as if it was a third kidney
> and he does not urinate using his blood filtering system (the kidneys).
> It is very difficult to try to get his digestive system to absorb
> nutrients while trying to get his heart and lungs to dump excess fluid.
> His body is having a tough time with diuretics for his CHF and medicines
> to aid with fluid retention.
>
> Little Anthony's heart is strong and although it beats great, the blood
> goes no where and swirls around in his chambers . a little bit of
> oxygenated blood with along with un-oxygenated blood goes back to his
> body and his color is ashen grey.  Occasionally, he pinks up but with
> out trend.  Anthony's broken heart is not a candidate for surgical
> repair and it appears that his right and left atrium make one major
> atrial cavity.  Additionally, his ventricles swap blood back and forth
> in both directions with each heart beat making his beating ineffective.
> When he was born, we were told they could probably manage his heart
> conditions for many years on medications, but that didn't take into
> account the difficulties he is now having with his nutritional
> absorption.
>
> Feeding Difficulties Continue:
> Anthony's nutritional intake is relying more heavily upon the nutrition
> he receives through his Broviac Central Line.  We have quite a few more
> hypotheses to test before a schedule for getting him back on absorbing
> formula might work.  (I.e. He keeps dumping all his fluids out of his
> ostomy - to the point of dehydration)  That said, He continues to be on
> TPN and Lipids via IV.   The good news is - for the first time, our
> little peanut is getting more than "just skin" on his bones.  It's like
> he is getting Jimmy Dean breakfast in a bag . all the good stuff that
> makes you feel well fed and fattens you up!!!  He looks really good and
> is gaining weight (and not too fast).  Hopefully we can increase his
> volume safely from a continuous 18 hour drip to a 16 hour drip and
> eventually back to a normal schedule . but this process of isolating
> variables is S-L-O-W and once we get the variables balanced, the little
> peanut inevitably grows again making all his demands higher (and off
> balance again)!
>
> Oxygen De-saturation Continues:
> Anthony is on continuous Oxygen with his pulmonary hypertension and the
> results of his sleep study haven't been written yet, but I heard he
> desaturated several times in the sleep lab leading them to make some
> type of diagnosis for Apnea.  We hope its not central apnea (meaning
> it's his central nervous system cutting on and off)
>
> Additional Consults:  Anthony's ostomy output could be responding as if
> he has an infection he is fighting off but we can't find it.  At least
> we couldn't until . a routine follow up for his hearing test showed
> fluid in his middle ear on a tempanagraph.  Anthony has always had very
> narrow ear canals and doctors have never been able to see his ear drums
> in any exam.  This past Spring he was treated for an ear infection
> because the entire canal was red (doc still couldn't see the ear drum).
> But we are beginning to think that he may have been experiencing ear
> problems for quite some time now.  (Could this be all part of the
> unexplained screaming attacks we had this past year?
>
> And we were told once that Trisomy 13 children just scream for no
> reason!!! (Yeah, right!)
> We are awaiting a consult from an ENT and the audiologist.
>
> Little Anthony is so blessed to have your prayers and thankfully is
> resting in God's decisive care.  Please continue to keep our family in
> your daily prayers as we navigate these waters and can't help but ponder
> the inevitable or if Anthony will again, as he has so many times before,
> miraculously turn around to bless us with smiles at home.
>
> Anthony will be One Year Old on July 8th     (24 more days)
>
>
> May the love of Christ fill your home and hearts with Blessings and
> Peace,
>
>
> Janina and Rick
> http://gregoryarritola.tripod.com <http://gregoryarritola.tripod.com/>
>
>
> P.S. Please pray that God continue to give our family courage, strength
> and perseverance.
>
>
> Once Again ~~~ The Gregory-Arritola Family Thanks You all for your
> continued faith filled prayers.
>
>
>
>                   Building ___ooOOoo__ Rainbows
>                        www.trisomyonline.org
>                   Families Helping Families On-line
>

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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