[tri-med] Re: Another question

Hello All,
       There's a cue to jump back in!  I ordered new paperback from Amazon, 
Karen, and will send it off to you when it gets to me!  

       Joanna's fine now, but had pneunomia yet again in October and was in  
PICU for 8 days.  They know her sooo well there!  Luckily they dote on her 
there and even emergency room staff didn't give me hard time about belonging on 
adult side.  They even found a new bipap mask that doesn't leak (much), but you 
didn't hear me say that!   She's back in program now, except for VERY cold 
days, very much usual smiling Jo, but ever more fragile.  

       Then computer must have caught whatever she had and lost its  'power 
supply?" which took over a month to get fixed - waiting for part, etc.

       Missed you all!  Will catch up eventually - but I've been saying that 
for years!

Chris H., Mom to Joanna - still smiling - T-18, 33 years!

       In a message dated 11/25/2007 12:17:55 AM Eastern Standard Time, 
trisomy@xxxxxxxxxxx writes:

> Can anyone remember the name of the novel that was written where the child 
> had trisomy 18? (the fictional novel - came out about 1998??) As usual I had 
> a copy kindly sent by Chris H as it wasnt released outside of the US but I 
> lent it to someone and never got it back. 
> 




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