[tri-med] Another Chromosome1 family

  There used to be a young lass on the list with a chromosome 1 deletion (I 
think p) by the name of Hannah, mum was Joan. 
  I will see if I have some contact details for her family - I know that they 
were members of CDO at least for a while, Linda Sorg may have her current 
contact details. Sorry I have never tried to run a matching service to any 
great lengths as there are groups out there with far better resources than I 
have.
  Ahhhhh actually I found her current website the address is
  http://hannahshaven.kidsneedprayer.net/

  Joan is sure to attract other families with chromosome 1 disorders including 
Trisomy I am sure.
  I will also keep looking in my archived stuff...........

  "We come to love not by finding a perfect person, but by learning to see an 
imperfect person perfectly"
  Sam Keen

  Keep Looking For Rainbows!!
     _--_|\
   /Karen \
   \ _.--._ /
            v Karen, Mum to Alex (10 years, T-18 Mosaic)
  http://members.optushome.com.au/karens


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

Other related posts: