[tri-med] Re: Ambien Trial update Question

----- Original Message -----
From: <THELINTS@xxxxxxx>
Subject: [tri-med] Re: Ambien Trial update Question


>
>     I have a question, what is the Ambien for is it for some sort of
> breathing difficulty or is it a seditive to allow the kids to sleep
better?


Hi Jamie :o)
Yes...the Ambien is to help Devon with his sleep patterns...or rather with
MY lack of sleep.

> We have just started Zion on Melatonin to help him sleep at night.


We tried Melatonin as recommended by our genetics counselor. She said that
the limited studies she'd seen done with Melatonin and children with
chromosome anomolies showed improvement in about 50% of the children. Devon
is in the 50% that it did not work on :o(


>     And a comment. What if your son does get addicted? Will it benifit him
> more to take the medication, and be addicted and have to take it for the
rest
> of his life. Or not to take it and for him to loose the extra 1-2 hours of
> sleep everynight that you have been able to give him by giving the
medication?


See this is the thing...Devon doesn't seem to suffer from his sleep
habits...unless you count his behavioural issues which we're not sure if the
sleep patterns affect or not. It's ME that has the problem ;o) 7 years of
sleep deprivation have taken their toll and I'm simply wiped out!!! That's
the reason it took me so long to get to the point where I was willing to
even try a real drug to help him sleep...I'm to the point where I just need
to be able to have 7 or 8 hours of uninterrupted sleep at least some night
per week. As it is I try to go to bed by 9:30 and I'm up to be at work at
5:30 AM which I usually get up at like 4:45 or 5 and shower, dress and
arrive at work (3 miles away) at 5:30 or a few minutes after.
Love,
Penny...devoted wife to Joe and "Mom" to Nick (11 1/2 yrs...lover of Harry
Potter, Pokemon, Fishing, Legos, Zelda, Popcorn Chicken, Pizza, cheese
sticks and chocolate icecream w/ovaltine sprinkles) and "Mommy" to Devon
(AKA-Stinky Boy, The Chief or Devonrude...Lover of Bear, Elmo and the
Muppets, Stuart Little, Barney, Blue, Pooh and Co. and food in general, 7
years old (6-15-95) !!! Full Trisomy 13 w/balanced translocation 5 and
13)... KC (the feline child...Brat gained her kitty wings 7-09-02 she was 16
years old +), Snitch and Lil' Dude (Nick's turtles :o)
:o) DeLand, Florida
Meet our family at http://www.trisomyonline.org/victor.htm  (Compliments of
my dear friend Karen!
And last but not least, check out the homepage I made!
http://www.geocities.com/penvic4/Penny_sPage.html
The stone that was rejected by the builders, has become the cornerstone
(Psalm 118)

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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