[tri-med] Re: Alex update

In a message dated 06/26/2004 12:11:46 PM, jwaite@xxxxxxxxxxxxx writes:

<< >After a while, you just can't continue to function effectively if you

retain that level of fear, and you take a >few steps back and DETACH.


Quite right. It's something our triers certainly teach us along the way

isn't it? Maybe that's why we seem blas=E9 to newbies who are just entering

the fold of life in the trisomy fun park.


Michelle mom to Alex (17, partial trisomy 14 mosaic) and Molly (13 >>

I am in awe that Alex got his license. Non of my kids got their licenses=20
before they were 18 and I was quite happy with that. I think Dom could drive=
 and=20
pass the test with a lot of tutoring and someone reading the written portion=
 to=20
him, but I have done nothing to help him because I don't think he has the=20
emotional stability to be safe behind the wheel. Not that it won't happen. T=
here=20
are plenty of people with bipolar disorder that function well in all facets=20=
of=20
life, including driving, as long as they are properly medicated. But we are=20
still working on just the right combination and dose. He just lost his job o=
f=20
two years because he called in that he couldn't get to work because he misse=
d=20
his bus, after his supervisor told him he couldn't have a day off to go the=20=
the=20
county fair. The next day he just didn't show up or call and I didn't find=20
out until an hour after he was supposed to be there. He had been warned (he=20=
had=20
missed the bus a couple of other times) he could lose his job and he just=20
didn't believe it. I spent today with him and he is trying to figure out a w=
ay to=20
make the whole deal someone else's fault. But he does not feel a bit bad abo=
ut=20
not going back to work. But he could have turned in a resignation and they=20
would have had a big party for him, but now it is just as if he never worked=
=20
there. It is kind of sad, but he has always told us he learns by doing, not=20=
by=20
having people telling him stuff. This is going to be a tough lesson.=20

Nan-mom to Dom, 20, tri 18 mosaic and bipolar; and Ali, 21, autism, TS, ADHD
                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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