[tri-med] Re: 5 month old Trisomy 13 baby

Daylin seems to be growning very well.  He was 5lbs 12oz at birth and is now 
14lbs at 5 months old.  So we have never thought about continuous feeds.  I did 
think it had something to do with stomach pain for a while.  He is such a gassy 
baby!
Is Brendan full t-13??
 Mikkinbrendan@xxxxxxx wrote:In a message dated 10/31/2002 9:16:12 AM Eastern 
Standard Time, 
sgtdixon@xxxxxxxxx writes:

> He was crying (He hates the car!) and all of a sudden I couldn't hear him 
> anymore. I looked back at him and he was blue. So I pulled over and I 
> pulled him out of the seat. And I really thought I had lost him at that 
> point. But I just held him for a few minutes and he started crying again 
> and his breathing regulated and he was OK. He just slept for a while. It 
> of course happened the next time I took him in the car. So I stopped going 
> anywhere with him by myself! Then he had surgery at 10 weeks of age and 
> after the surgery it happened a lot when he would cry. Now it happens 
> mostly when he throws up. I thought it was him choking on his formula 
> because he is fed through a g-button, he has trouble swallowing. But I've 
> been trying not to get scared when it happens so I can tell what all i
> s happening. It all seems so crazy because I feel like I have to be his 
> doctor!



Brendan was like this too for a while. A lot of crying then got all stiff 
and turned blue, I would blow in his face and pat his back to get him to 
breathe again. I think it stopped when we put him on a continuous feed. He 
was throwing up a lot and had gotten pneumonia and was put into the hospital 
last April, he was 8 months. Since the continuous feed he has not had any 
epidsodes like that and has gain some weight.


Mikki (Michelle) wife to John (8years)
Mom of Michael (8), Caitlin (5),
Siobhan (2), Brendan T-13 (14 months)
White Plains, NY
Mikkinbrendan@xxxxxxx


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