[tri-med] Re: 02 stats dropping---

Soleah (and many other babies) have the same difficulties.  For Soleah, at 1-2 
days, they ended up putting an umbilical line in her to get faster iv fluids.  
They did give her TPN (?)(another nutritional fluid) but I have heard mixed 
thoughts on that.  Her blood sugar dropped very low and reportedly caused a 
seizure so they were careful about keeping her sugar up.  She did also require 
oxygen for a long time (until after her heart surgery) but then her sats kept 
up fine.  I think as Karen said, these kids are globally affected in growth and 
development--some things that just "kick in" on a typical kiddo take a while 
longer in a trisomy baby.  Many times, it's a juggling act and a matter of 
trial and error--encourage the doctors who are helping you all that this is 
typical.
 
We're praying for Annie!
Therese <therese@xxxxxxxxxxxxxxxxxxxxxxx> wrote:

From: Barbara Farlow 
Subject: urgent: O2 stats/ sugar levels

Please, we need your help regarding uncovering clues as to why our 5 
day old trisomy 13 is having difficulty. O2 stats are dropping slowly 
and having trouble with low sugar levels. She doesnt respond to 
increases in sugar (IV and increase in feeding) but does respond to 
blow by oxygen to increase saturation. Doctors cant see a reason for 
her heart to respond in this way. Lung X-Ray looks a little bit 
"funny". In anybody's experience does this trisomy condition affect 
these things? We would greatly appreciate any experience you could 
share.
-The Farlow Family (parents to Annie, Tri 13, 5 days old)
Building ___ooOOoo__ Rainbows
www.trisomyonline.org
Families Helping Families On-line



Nanci - Wife to Mike, the ever kind and patient one . . . Alicia, 21, in her 
LAST year of nursing school! . . . Shani, 15, homeschooler, volleyball player 
(for the moment) . . . Soleah, 11, Trisomy 18M--always teaching me . . . Corey, 
3, singer, actor!


Romans 5:3  . . . but we also glory in tribulations, knowing that tribulation 
produces perserverance; and perserverance, character; and character, hope.

                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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