[tri-family] Re: Vail Bed

--- Original Message ----- 
From: "Wright" <jm.wright@xxxxxxxxxxx>
Subject: [tri-family] Re: Vail Bed


> Exactly....the loud zip is annoying.  I've tried to put stuff on the 
> zipper to make it quieter, but nothing works good.  Sometimes when I check 
> on Nick (diaper, etc) I wake him up because of the loud zipper and clank 
> of the railing.

We can't step foot in there in the wee hours...only the first little while 
after I put Devon to bed...from the time he falls asleep on the couch until 
12ish we could pretty much put a grenade in his diaper and he wouldn't wake 
up except for the rousting to walk him to bed....but even then he pretty 
much sleepwalks with me guiding him :o) After 12 though...any little noise 
or light wakes him up...and not just for a little bit either...he'd be up to 
party :o( Hence the reason he gets nothing to drink after 6-6:30...He gets 3 
oz DanActive probiotic drink (it's suppose to help the immune system) right 
after dinner and then nothing. IF by chance he rousts more than usual when I 
give him a leg up in his bed, I give him like an ounce in a bottle (sitting 
up) and skidaddle outta there...hurry to the kitchen to turn out the stove 
light throwing the entire house into blackness :o) He gets changed (with 
diaper doubler added) right before he goes to bed and gets his meds...then 
he's usually good to go until around 4:30 - 5:30 AM.  :o)
There'd be no going back to sleep if he heard those loud bed noises in the 
wee hours :o(

Love,
Penny...loving & devoted wife to Joe, the best husband in the world...mom to 
Nick (14 yrs old...lover of Fishing, Dragons, Turtles, Yu Gi Oh, 
RollerCoasters, Chocolate Icecream w/ Ovaltine sprinkles, Devon (10 
yrs...lover of Barney, Blue, Nappy ol' Bear w/dreadlocks, Elmo, & food in 
general...Full trisomy 13 w/balanced translocation 5 and 13) , and Trooper 
the Wonder Dog...our 9 ? year old yellow lab adopted from FL Lab Rescue 
12/13/02 :o)
Please visit the webpage my wonderful friend Karen made for me on our 
trisomy listserv at...
http://www.trisomyonline.org/victor.htm
AND...Devon's moment of glory in Exceptional Parent Magazine...
http://www.eparent.com/familiarfaces/ffaces_4_01.htm
AND...see our 3 boys on FL Lab Rescue's website at:
http://www.labradorrescue.net/success/index.html (Look for the name Trooper)
AND :o) http://www.thehealingpowerofprayer.com/album.htm
AND http://web.coehs.siu.edu/Grants/TRIS/
"The stone that the builders did not want became the cornerstone." (Psalms 
118:22) 


                  Building ___ooOOoo__ Rainbows
                       www.trisomyonline.org
                  Families Helping Families On-line

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