[tri-family] Re: Continuous NJ feed at home


-----Original Message-----
>From: callstheshots@xxxxxxx
>
>sad today. Charlotte failed her gastric emptying test and therefore will not 
>get her nissen or even her g-tube this Wednesday. We are going home on 
>continuous feeds through an NJ which makes us basically home bound. She will 
>also start CPAP at home and I feel like I'll be running my own little hospital 
>ward. My husband and I are reworking our work schedules so we can take care of 
>her and still pay the bills. Earlier today I thought it was the end of the 
>world but I'm feeling okay now. They will repeat the gastric emptying test in 
>1 month and re-evalulate. Maybe need the bottom of her stomach "opened up" 
>which can result in permanent diarrhea. Great. At least the gastric study 
>comfirmed she is refluxing so hopefully we've figured out the lung thing and 
>no more pneumonia. 

Erin,
Man, I am so sorry.  I was thinking of your little peanut yesterday & wondering 
how things were going.  It's so incredibly hard
to have set backs.  I am thinking about you.
Tons of blessings,


Chris
wife to Pat, mama to Dalton 15yo, Darby 12yo, McKensie 11yo, and Mari 5yo (full 
T18, dob 8/24/01 & The only one who always likes me....unless I'm trying to 
wipe her nose)
Tipp City, OH  USA
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