-----Original Message----- >From: callstheshots@xxxxxxx > >sad today. Charlotte failed her gastric emptying test and therefore will not >get her nissen or even her g-tube this Wednesday. We are going home on >continuous feeds through an NJ which makes us basically home bound. She will >also start CPAP at home and I feel like I'll be running my own little hospital >ward. My husband and I are reworking our work schedules so we can take care of >her and still pay the bills. Earlier today I thought it was the end of the >world but I'm feeling okay now. They will repeat the gastric emptying test in >1 month and re-evalulate. Maybe need the bottom of her stomach "opened up" >which can result in permanent diarrhea. Great. At least the gastric study >comfirmed she is refluxing so hopefully we've figured out the lung thing and >no more pneumonia. Erin, Man, I am so sorry. I was thinking of your little peanut yesterday & wondering how things were going. It's so incredibly hard to have set backs. I am thinking about you. Tons of blessings, Chris wife to Pat, mama to Dalton 15yo, Darby 12yo, McKensie 11yo, and Mari 5yo (full T18, dob 8/24/01 & The only one who always likes me....unless I'm trying to wipe her nose) Tipp City, OH USA http://pg.photos.yahoo.com/ph/misstippcity/my_photos http://home.earthlink.net/~loganfamily/id1.html http://www.benotafraid.net/story.asp?id=38 http://web.coehs.siu.edu/Grants/TRIS/ www.trisomyonline.org www.trisomy.org Building ___ooOOoo__ Rainbows www.trisomyonline.org Families Helping Families On-line