-=PCTechTalk=- Re: OT - Fibro Info

Not sure if you're aware of it, or care but there is a list for Fibro 
people at:

Fibro_Forum@xxxxxxxxxxxxxxx

It's a good place to share info and get support from people who DO 
understand what you're dealing with.  While no one has objected here (and 
I've made note of what supplements are recommended) I thought several of 
you might like to join the Fibro list (I'm on it as well).

Tori

At 06:28 PM 10/2/03, you wrote:
>Read the book "From Fatigued to Fantastic" by Teitlebaum and the
>Fibromyalgia Workbook.
>The stuff I've suggested are what my rheumatologist (MD) put me on and it has
>helped a great deal.
>
>mjh
>
>
>In a message dated 10/2/03 7:15:20 PM Eastern Daylight Time,
>rem41mag@xxxxxxxxxx writes:
>
>
> > I also look online about vitamins & I have a big book, tho a few years
> > old...
> > there is a natural food store near us, that makes all its own bread, 
> bakery &
> >  grows it own organic veggies or has a co-op for that. they carry several
> > lines of vitamins & herbals, as well as whole grains & seeds. I used to 
> be able
> > to get a lot of vitamin help from there, they had 2 trained nutritionists
> > that worked there, but a little over a year ago, they changes hands & 
> cut down
> > on there brands & different stock of vitamins & herbals. But I did 
> originally
> > get my rubs from there..
> > I now found them online at the vitaminshoppe.com at a lower cost, that is
> > including there shipping cost, a flat 4.95, which every so often they 
> waive if
> > you spend a certain amount. you can find out about differnt things about
> > vitamins & herbals & search by name oe brand. usually have at least 30% 
> off of
> > store list price & carry their own brand that is comparatively cheaper. 
> but not
> > in the rubs.
> > I also rotate rubs with some found at the pharmacy, and a leg energizing
> > cream from Mary Kay, that I found by accident works well at relaxing my 
> back &
> > neck spasms.
> >
> > I am always looking, but want to watch for conflicts with medications , 
> plus
> > I have many drug, seasonal & other allergies & have to take that into
> > account.
> > Fibro is put into the class of an auto immune disease, but mostly 
> treated by
> > rhuematologists.
> > My rheumy is actually the one who found the bad disks in my neck & sent me
> > onto a neurosurgeon for more tests.
> > I still have to deal with the spasms in my neck, shoulders & back 
> areas, but
> > the fibro can trigger a lot of that too...
> > I had nerve blocks, they did not help & trigger point injections that 
> didn't
> > help either, but that was before surgery... my trigger points were so bad,
> > that the doc had to fight with it to get the needle in position, it 
> actually
> > pushed the needle out & he was a lot bigger & stronger than me !
> >
> > most chrios will not work on fusion patients, as they can do more harm...
> > and therapy should start out easy & if you do have fibro it should 
> always be
> > esy, as otherwise it will just set you up for a flare ...
> >
> > at least they are doing more study on fibro & like conditions ( i.e. 
> chronic
> > fatigue, lupus, other rheumatic conditions, MS & ect) but the old school
> > docs still do not believe in these 'conditions' since they were not 
> taught them
> > in school !
> > silly ....
> >
> > I guess the best thing we can do is educate ourselves & ask our docs, &
> > hopefully they are open minded to look into it themselves.
> > My gyn works with a midwife & she is always researching alternative meds 7
> > treatments to help their patients.
> >
> > you can always write me on my email to keep in touch about these 
> things, as
> > this is far from a computer problem & is probably boring everyone :-)
> >
> > hugs ,  Faythe
> >
> > >>there is a little pharmacy by me, and they actually still make some of
> > their own concoctions! A friend told me to stop in there -that the 
> pharmacist
> > had recommended the fibro-malic to them and how much it helped.
> > Can't say it has done a lot for me at this point - but there is still 
> hope!
> > I've also looked up things on the computer at vitamin world - it says what
> > products are and what they supposedly help with.
> >
> > A lot of these problems go hand in hand with each other - just about
> > everyone who has one tends to end up having the others! - the 
> auto-immune problems.
> >
> > where do you get your rubs?
> > Cris
> >
>
>
>
>MJH
>
>
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